Category Archives: Health data

Medicare data shows dangerous prescribing habits, lack of oversight

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates social media efforts of AHCJ and assists with the editing and production of association guides, programs and newsletters.

ProPublica’s Tracy Weber, Charles Ornstein and Jennifer LaFleur, in an analysis of Medicare prescription records, found that “some doctors and other health professionals across the country prescribe large quantities of drugs that are potentially harmful, disorienting or addictive,” with no attempt by the federal government to monitor or deter the practices.

“… officials at the Centers for Medicare and Medicaid Services say the job of monitoring prescribing falls to the private health plans that administer the program, not the government.”

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CMS unveils dataset on top hospital discharge payments

Liz Seegert

About Liz Seegert

Liz Seegert (@lseegert), AHCJ’s topic leader on aging, is writing blog posts, editing tip sheets and articles and gathering resources to help our members cover the many issues around our aging society. If you have questions or suggestions for future resources on the topic, please send them to liz@healthjournalism.org.

The public can now compare hospital-specific charges for the top 100 most frequently billed discharges at the 3000+ hospitals across the US that receive Medicare payments.  The Center for Medicare and Medicaid Services unveiled its free Medicare provider charge dataset which can be analyzed down to ZIP code level.

Jonathan Blum, acting principal deputy administrator of CMS, said in a webinar with AHCJ members that this effort has been years in the making, as part of the agency’s effort to be more transparent.

Data for FY 2011 is on the AHCJ website, downloadable as an Excel file (a CSV file is available from CMS). From there, it can be sorted by diagnosis related group (DRG) codes, city, state, ZIP and charges. This tool allows journalists, advocates and consumers to compare costs nationally, between or among states, cities, or counties. Data is only available for Medicare Inpatient Prospective Payment System (IPPS) — the fee-for-service component — based on a rate per discharge using the Medicare Severity Diagnosis Related Group (MS-DRG). These DRGs represent almost 7 million discharges or 60 percent of total Medicare IPPS discharges. It does not include data for U.S. territories or Puerto Rico, or for any Medicare Advantage payments.

Chris Powers, acting director of the Information Products Group, Office of Information Products and Data Analytics demonstrated the dataset by comparing the varying cost of a total joint replacement. Selecting the specific DRG code netted charges ranging from $321,000 to just over $20,000.

The goal is to empower consumers, particularly those who are uninsured and may have to bear the entire cost, who may be underinsured, or who have a high deductible, to ask about appropriate charges  for a given procedure and question discrepancies that cannot be explained by geography, patient population, or affiliation differences. Medicare IPPS pays a fixed cost to hospitals, however, this data can be used as a guideline for non-Medicare fee-for-service charges.

In the Q&A section of the webinar, I asked if there would be a similar data set compiled for Medicare Advantage payments so consumers insured under those plans can also compare charges. Powers said CMS is looking at what the next steps are in terms of data release. “That is a very good question and certainly those concerns are in our minds as we make those considerations.”

Join today’s webinar on newly released hospital cost data

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates social media efforts of AHCJ and assists with the editing and production of association guides, programs and newsletters.

The federal government released data today showing what hospitals across the country charge Medicare for the same treatment or procedure. The 2011 data includes bills submitted by 3,300 hospitals for the 100 most commonly performed treatments. This allows a basis for some local or regional comparisons and a starting point for stories on hospital costs. 

The data is available on the AHCJ website. A webinar for AHCJ members on using the data will take place today at 2 p.m. ET with Jonathan Blum, the acting principal deputy administrator at the Centers for Medicare & Medicaid Services, and Karl Stark, AHCJ vice president and Philadelphia Inquirer health editor. Register here.

More on medical costs

The cost of medicines, devices, tests and treatment is such an important element of health reporting that it is included in AHCJ’s Statement of Principles: “Strive to include information about cost and insurance coverage in any reporting of new ideas in medicine.”

Brenda Goodman, AHCJ’s topic leader on covering medical studies says that the runaway costs of such things are arguably one of the most important issues in medicine, but it’s one that’s often missing from health stories.

Michael Schroeder, who covers health for Angie’s List Magazine, is required to include meaningful medical pricing information in his stories. He acknowledges this is no simple task but urges reporters to have a strategy and be persistent. “You won’t always get the information you’re after, but your batting average will certainly go up, and you won’t be left to routinely settle for hollow numbers.”

To that end, Goodman and Schroeder have contributed tip sheets to help reporters get that vital information. Goodman focuses on several resources where you might find pricing information, while Schroeder shares his strategy and the specific questions he asks sources about costs.

Health Data WorkshopHealth Data Workshop

For more on using data to report on health care, journalists are invited to tap into health data in a special workshop, Oct. 3 & 4 in Anaheim, Calif.

This AHCJ workshop offers something for data newcomers and  veterans – from spreadsheet basics to visualizing data online. You’ll come away with skills and ideas on teasing stories out of datasets and tools on presenting these stories.

Pa. bill would require disclosure of food stamp purchases

Felice Freyer

About Felice Freyer

Felice J. Freyer is a member of AHCJ's board of directors, serving as co-chair of the organization's Right to Know Committee.

Food stamps

Photo by cosmocatalano via Flickr

A Pennsylvania congressman last week filed a bill that would require retailers to report which items are bought with food stamps.

The proposed “SNAP Transparency Act,” sponsored by Republican Rep. Tom Marino, would require the secretary of agriculture to establish a uniform reporting system under which retailers would track “the complete range, identities, sizes, quantities, and costs of particular food items” purchased with benefits from the Supplemental Nutrition Assistance Program, or food stamps.

If passed, the legislation could give journalists and advocates access to long-sought information about the food purchases of SNAP recipients, at a time of growing concern about their access to healthy foods and about obesity and related health problems among the poor. Currently the U.S. Department of Agriculture does not have the authority to collect such information.

The act would address one of two issues raised in a recent letter to Agriculture Sec. Tom Vilsack from AHCJ and six other organizations representing journalists and open-government advocates. Continue reading

Guide to data to aid in health care reporting

Joanne Kenen

About Joanne Kenen

Joanne Kenen, (@JoanneKenen) the health editor at Politico, is AHCJ’s topic leader on health reform and curates related material at healthjournalism.org. She welcomes questions and suggestions on health reform resources and tip sheets at joanne@healthjournalism.org.

Every month we add to the resources and data sections of the health reform core topic area, with notes on how it can be used to report on reform. But I also wanted to point out a guide to data for health care reporters that our colleagues at Reporting on Health put together.

Journalists call on USDA to release food stamp information

Felice J. Freyer & Irene Wielawski

About Felice J. Freyer & Irene Wielawski

Felice J. Freyer and Irene Wielawski are co-chairs of AHCJ's Right to Know Committee and members of AHCJ's board of directors.

The Association of Health Care Journalists, along with six other journalism and open-government groups, has called on the U.S. Department of Agriculture to release to the public vital information about the multibillion-dollar food stamps program.

Currently, the USDA refuses to reveal how much money individual retailers make from the Supplemental Nutrition Assistance Program, better known as food stamps. Additionally, the USDA does not disclose which products are purchased with SNAP dollars or how much is spent on each product, in aggregate.

This information could show which businesses benefit from the program and also inform public policy debates about obesity and its causes, the organization argues.

The USDA’s position runs contrary to President Obama’s promise of government transparency, and stands in sharp contrast with practices at other federal agencies. For example, the Temporary Assistance for Needy Families discloses where recipients used their EBT cards to withdraw cash assistance. A wealth of information is available about Medicare and Medicaid. Continue reading

Cancer registries can provide story ideas, context #ahcj13

Curtis Skinner

About Curtis Skinner

Curtis Skinner is a reporter at The New York World. He is attending Health Journalism 2013 on an AHCJ-New York Health Journalism Fellowship, which is supported by the New York State Health Foundation.

You don’t need a background in epidemiology to get great information and story ideas from state and national cancer registries.

Those databases full of hospital/clinic-reported patient information and outcomes for cancer victims from the census tract to national level are valuable tools for researchers studying health trends, but also can be a trove of information for reporters. With about 1.3 million American adults and 12,000 children dying of cancer every year, it’s easy to see the value of these resources as reporting tools.

Each state and a number of organizations run registries. The National Cancer Institute runs a large registry, called SEER, that reporters can use to compare cancer trends across time, ethnicity, gender and ages. The Commission on Cancer, run by the American College of Surgeons, operates another good resource for national cancer statistics called the National Cancer Database. And while each state operates its own registry, the usefulness and usability will vary by state to state. Continue reading

Big data is coming to a study near you

Brenda Goodman

About Brenda Goodman

Brenda Goodman (@GoodmanBrenda), an Atlanta-based freelancer, is AHCJ’s topic leader on medical studies, curating related material at healthjournalism.org. She welcomes questions and suggestions on medical study resources and tip sheets at brenda@healthjournalism.org.

Photo by bionicteaching via Flickr

As social networks and search engines catalog our every click and keystroke, they generate billions or even trillions of data points about how and why we do the things we do. Companies trying to parse those disparate bits for clues about consumers have come up with a name for all that information – big data.

Broadly, big data is about using computers to search for patterns in huge amounts of information. And as columnists for The New York Times and NPR recently opined, 2012 was big data’s breakout year.

Big data played a huge role in the strategy and prediction of the election. It was lampooned in comics. It even became a meme among the kind of folks who get the wonky punch lines on “The Big Bang Theory.”

I started the year uneasy with big data. I was hearing the term everywhere, but had only the shallowest understanding of what it meant or why it was important.  I had no idea if or how it might be relevant to covering medical studies.

Here’s the short answer: It is. And if you cover research, you need to understand it and be able to ask questions about it. Continue reading

Getting past conventional wisdom in the prescription drug epidemic #ahcj13

Alysia Santo

About Alysia Santo

Alysia Santo is a reporter at The Albany Times Union. She is attending Health Journalism 2013 on an AHCJ-New York Health Journalism Fellowship, which is supported by the New York State Health Foundation.

Drug-induced fatalities are one of the only preventable causes of death that’s rising, rather than decreasing.

That’s because deaths from prescription narcotics have exploded, and as the panelists at a Health Journalism 2013 panel explained, there are ways to get past the talking points of this “epidemic” and decipher some of the causes for the public.

Lisa Girion, an investigative reporter with the Los Angeles Times, went document diving to get to the root of the problem in a multi-part series she reported with Scott Glover called “Dying for Relief.” Continue reading

Experts disagree on value of electronic health records #ahcj13

Richard Asinof

About Richard Asinof

Richard Asinof is a contributing writer to The Providence (R.I.)Business News. He is attending Health Journalism 2013 on an AHCJ-Rhode Island Health Journalism Fellowship, which is supported by The Rhode Island Foundation.

<span class="credit">Photo by Pia Christensen</span>Farzad Mostashari, M.D., Sc.M., the national coordinator of health information technology, advocated that the nation's investment in health information technology is necessary to fix the health care system.

Photo by Pia ChristensenFarzad Mostashari, M.D., Sc.M., the national coordinator of health information technology, advocated that the nation’s investment in health information technology is necessary to fix the health care system.

Electronic health records are a tool, the bottom floor on creating standards to move from mere billing and data collection into a platform to change the way health care is delivered, the way it is paid for, and the manner in which patients are engaged, according to Farzad Mostashari, M.D., Sc.M., the national coordinator of health information technology at the U.S. Department of Health and Human Services.

Mostashari’s optimistic view of EHR implementation, presented at Health Journalism 2013 in Boston, was challenged by Stephen Soumerai, Sc.D., professor of population medicine at Harvard Medical School. Soumerai that the government’s investment of $1.6 trillion in building the health information technology infrastructure is unsupported by any research that it will create the predicted return on investment, citing the recent Rand Corporation study that said cost savings would not occur. The investment was being made without any evidence that changes in delivery, outcomes, quality and cost savings can be achieved. Continue reading