List date(s) this work was published or aired.
June/July 2011
Provide a brief synopsis of the story or stories, including any significant findings.
This piece provides an in depth look at a rare neurological condition called Tuberous Sclerosis Complex (or TSC). Readers learn about pharmacological and behavioral/lifestyle approaches to managing the disease, as well as surgical options. The author also highlights novel therapies currently under investigation. These drugs target the underlying pathway that regulates “normal” cell growth.
Explain types of documents, data or Internet resources used. Were FOI or public records act requests required? How did this affect the work?
The author reviewed published scientific studies, drug information resources, power point presentations from interviewed sources and other materials during her reporting.
Explain types of human sources used.
The author interviewed patients, physicians and researchers to draft the story.
Results:
The piece helped build awareness about TSC and provided the TSC community with some much needed support.
Follow-up (if any). Have you run a correction or clarification on the report or has anyone come forward to challenge its accuracy? If so, please explain.
No
Advice to other journalists planning a similar story or project.
Do your research to identify the top experts in the field, and find a family who has been affected by the disease or disorder to add a general interest/human component.