Trisomy 18 is normally fatal within weeks of birth. But some parents are getting more time — with surgeries, luck and an incredible amount of effort.
To report this article over the course of more than a decade, Dr. Sheri Fink visited the family homes of children with trisomy 18, sat with their parents in the NICU, observed surgeries, traveled to annual gatherings and, in some cases, attended funerals.