Tag Archives: transplant

Wisconsin reporter explored the science of organ transplants

Tara Haelle

About Tara Haelle

Tara Haelle (@TaraHaelle) is AHCJ’s medical studies core topic leader, guiding journalists through the jargon-filled shorthand of science and research and enabling them to translate the evidence into accurate information.

Photo: U.S. Pacific Fleet via Flickr

Photo: U.S. Pacific Fleet via Flickr

News features on organ transplants often focus on a specific success story. But there’s far more under the surface when it comes to the issue of organ donation and policies surrounding them.

David Wahlberg of the Wisconsin State Journal took a deep dive into this, producing a nine-part in-depth series that examined several different angles. His work picked up a first place Award for Excellence in Health Care Journalism in 2015 in the Health Policy (small) category.

Wahlberg focused on three aspects of organ transplantation: allocation, deceased donation and living donation. Continue reading

Doctor: News coverage of face transplants has helped donors’ families to consent

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ’s social media efforts and edits and manages production of association guides, programs and newsletters.

This is a guest post from AHCJ member Chelsea Conaboy that first appeared in “White Coat Notes” at Boston.com.

By Chelsea Conaboy

Dr. Bohdan Pomahac and others at Brigham and Women’s Hospital in Boston grappled with lots of variables as they prepared to perform some of the first-ever face transplants. One they had little control over: Would the families of potential donors support the idea?

Overwhelmingly, families have been willing to have their loved ones’ face donated for transplant, Pomahac said Wednesday night, speaking at the inaugural event of the Boston chapter of the Association of Health Care Journalists.

Pomahac credited the media in part for the response, saying journalists’ eagerness to tell the stories of patients and what the transplant has meant for them has affected public opinion.

“People have really embraced it as something important,” he said.

Pomahac and a team of plastic and transplant surgeons at the hospital performed the first full face transplant in the United States in March 2011, about two years after doing a partial transplant on James Maki. Two other full transplants have been completed since.

Pomahac said he was “scared” of the media attention early on, having heard stories of tabloid reporters and photographers trying to sneak into hospitals in Europe where the earliest procedures were done.

Body guards were posted at the doors of patient rooms, and only those surgeons and support staff on a list were allowed near the operating room, he said. But the hospital staff also worked in advance of the surgeries to create a media plan that allowed for the stories to be told, something all four patients wanted. Each posed different challenges.

During Maki’s procedure, ABC was filming Boston Med at the hospital, so Pomahac was fitted with a microphone through parts of the preparation, a stressful period. At points, he said, he “just couldn’t stand it,”

“It added another level of intensity in this very, very tight period of time,” he said.

When Dallas Wiens was in surgery for the first full transplant in the United States, a crew from a British tabloid descended on the hospital with a document alleging it had exclusive rights to his story, he said. Wiens, who is blind, thought he had signed a form allowing the newspaper to take his photo, said Brigham spokeswoman Erin McDonough, who also attended the Wednesday event at Boston University, and the hospital worked with Wiens’ attorney to call off the crew.

Charla Nash, who had had a lot of media coverage prior to her surgery, came with an agent and attorneys who worked with the hospital communications staff.

Pomahac said he became a bit of a star in the Czech Republic, with most media outlets profiling him. He said journalists there have allowed him to read their stories for fact-checking before publishing.

“That’s something I would love to see here, actually,” he said. “I hear its not going to happen.”

Pomahac compared face transplants to the first kidney transplant, performed at the Brigham in 1954, between identical twins.

People then said, “So what?” What would the procedure mean for patients without a twin?

“It seemed like this bizarre, rare operation that, okay, we’re able to do it, but it’s unlikely to lead anywhere,” he said.

For many years, it didn’t. The development of immunosuppression drugs changed that. Similarly, if the side effects of those drugs used in face transplants can be controlled, and if insurers agree to cover the costly procedure, full or partial face transplants will become more widely used, he said.

One other limiting factor, he said, is the surgeons. Face transplants are long — Mitch Hunter’s surgery, the shortest at the Brigham, ran more than 14 hours, he said. Surgeons will become more efficient as the procedure becomes more common and they develop a better workflow, Pomahac said.

Now, he added, “everyone gets tired at the same time. Everyone works slower. But no one wants to leave” the operating room.

Organ network looks to address regional disparities

Andrew Van Dam

About Andrew Van Dam

Andrew Van Dam of The Wall Street Journal previously worked at the AHCJ offices while earning his master’s degree at the Missouri School of Journalism.

American Medical News‘ Kevin O’Reilly writes that, spurred on by attention paid to Apple boss Steve Jobs’ trip to Tennessee to take advantage of shorter liver transplant waiting lists, the United Network for Organ Sharing (which has a government contract to run the country’s Organ Procurement and Transplantation Network) will meet in the spring of 2010 to address socioeconomic and regional variations in access to donated organs (see a graph of regional waiting list sizes here).

clocks
Photo by futureatlas.com via Flickr

Jobs did not break any rules, experts say, but he did use his resources to take advantage of an imperfect system. One of the biggest problems? Multiple listings, in which one wealthy patient hops on waiting lists across the country and plays the odds to get the fastest-possible transplant. In what may be an obstacle to reform, some argue that multiple listing is a reasonable practice used by rich and poor alike. Additionally, others say that regional differences in transplant wait times reflect more than just differences in access to health care; they also reflect the high cost of transporting live organs and differing regional success rates in encouraging new donors and standards for harvesting organs.

Related

Memphis hospital confirms liver transplant for Jobs

Scott Hensley

About Scott Hensley

Scott Hensley runs NPR’s online health channel, Shots. Previously he was the founding editor of The Wall Street Journal’s Health Blog and covered the drug industry and the Human Genome Project for the Journal. Hensley serves on AHCJ’s board of directors. You can follow him at @ScottHensley.

Apple CEO Steve Jobs still isn’t talking about his health. But a Tennessee hospital confirmed a Wall Street Journal scoop over the weekend that said the secretive exec had a liver transplant.

steve-jobs

Steve Jobs appeared at the 2008 MacWorld Conference and Expo. (Photo: Matthew Yohe via Wikimedia)

Jobs has been ill and took a leave from the company early this year. But his statements, and those of the company, have been vague – at best. The front-page Journal story saying he’d had a liver transplant was nearly as vague, lacking attribution for the claim.

Well, Methodist Hospital of Memphis, with Jobs’ permission, has ended the speculation on the veracity of the transplant report. In a statement, the hospital said he got a new liver because he was “the sickest patient on the waiting list at the time a donor organ became available.” Tennessee has shorter waiting times than most states.

Jobs’ outlook is good, the hospital said. Wonder what Apple and Jobs have to say on that score?

It’s especially curious that Methodist, operating under patient privacy rules, was more inclined to get the news out than Apple, a publicly traded company obligated by securities regulations to disclose material information.

There’s plenty of wiggle room in those regs. Still, as Columbia University law prof John Coffee tells Business Week, “Apple is probably an extreme example where the CEO’s health is very material. Walt Disney in 1950 would have been an equivalent.”

Update: A Reuters reporter spotted Jobs at the Apple campus on Monday, adding to speculation that the CEO may have returned to work.

Earlier: Jobs’ letter too vague for meaningful reporting