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AHCJ-NLM Health Journalism Fellowships: Agenda

AHCJ-NLM Health Journalism Fellowships

The Association of Health Care Journalists has teamed up with the National Library of Medicine to present the first AHCJ-NLM Fellowships. AHCJ has selected six journalists to spend a week on the campus of the National Institutes of Health learning how to explore the latest NIH research, understand and interpret biomedical statistics, take advantage of NLM's data, programs and resources for stronger stories and get hands-on training in PubMed, MedlinePlus, ClinicalTrials.gov, ToxNet and Household Products Database.

Sunday, Sept. 13

6:30 p.m.

Meet in hotel lobby

7 p.m. 

Dinner at Black’s Bar & Kitchen; 7750 Woodmont Ave., Bethesda, 301-652-5525

Monday, Sept. 14

9-10 a.m. 

Welcome & Overview of National Library of Medicine

  • Donald A.B. Lindberg, M.D., director, NLM
  • Robert A. Logan, Ph.D., senior staff, NLM
  • Kathleen Cravedi, director, Office of Communications & Public Liaison, NLM

Location – NLM Visitor’s Center (Building 38A; ground floor)

10-10:10 a.m.

Break

10:10 a.m.-Noon

MedlinePlus Tutorial

Session will provide training on how to better use MedlinePlus, which contains information on more than 800 diseases and conditions.

  • Andrew Plumer, reference librarian, MedlinePlus.gov

Location – NLM Visitor’s Center (Building 38A; ground floor)

Noon-1 p.m.

Lunch (on your own)

1-1:30 p.m.

Tour of National Library of Medicine

  • Melanie Modlin, associate director, Office of Communications & Public Liaison, NLM

Location – NLM Visitor’s Center (Building 38A; ground floor)

1:45-3 p.m.

Health Disparities in the U.S.  
Session will provide guidance on accessing available data and resources regarding health disparities from the National Center on Minority Health and Health Disparities (NCMHD).

  • Irene Dankwa-Mullan, M.D., MPH, program director, medical officer, Office of Innovation and Program Coordination, NCMHD

Location – Building 38A; Room B1N30

3-3:30 p.m.

Break

3:30-4:45 p.m.

Insightful Medical Reporting: Eight Tips
Session will explain how to interpret biomedical statistics and provide tips to enhance medical reporting.

  • Robert A. Logan, Ph.D., senior staff, NLM; professor emeritus, Missouri School of Journalism

Location – NLM Visitor’s Center (Building 38A; ground floor)

5 p.m. 

End of the day; on your own

Tuesday, Sept. 15

9-10:30 a.m.

National Center for Biotechnology Tutorial
Session is an overview of NCBI and a hands-on training to learn how to access and mine NCBI resources, such as PubMed and the Database of Genotypes and Phenotypes (dbGaP).

  • Dennis Benson, Ph.D., senior scientist, NCBI

  • Steve Sherry, Ph.D., senior scientist (GWAS and dbGaP/Forensics), NCBI

Location – Building 38A; B2-14 conference room

10:30-10:40 a.m.

Break

10:40 a.m.-Noon

NCBI Tutorial, Continued

  • Peter Cooper, Ph.D., staff scientist (PubMed and NCBI Field Guide), NCBI

Location – Building 38A; B2-14 conference room

Noon-1 p.m.

Lunch with NCBI officials (informal)
Location – Building 38A; B2-14 conference room

1-2 p.m.

ToxNet and Household Products Database Tutorial
Session will provide training on how to better use ToxNet, a collection of toxicology and environmental health databases, and Household Products Database, a database that describes the health effects of more than 8,000 consumer brands.

  • Shannon Jordan, chemist, Specialized Information Services, NLM

Location – Building 38A; 4th floor conference room

2-3 p.m.

NIH Extramural Grant Process
Session will explain how applicants obtain grants through the NIH extramural grant process.
Web sites: NIH explanation of different types of grants and where grant monies go

  • Milton Corn, M.D., deputy director, Research and Education, NLM; former dean, Georgetown University School of Medicine

Location – Building 38; Room B1N30

3-3:10 p.m.

Break

3:10-4:40 p.m.

ClinicalTrials.gov Tutorial
Session is a hands-on training to use and mine ClinicalTrials.gov, a registry of federally and privately supported clinical trials conducted in the United States and around the world.
Rebecca Williams, Pharm.D., MPH,  assistant director, ClinicalTrials.gov

  • Nicholas Ide, M.S., technical lead and chief architect, ClinicalTrials.gov

Location – Building 38A; 7th floor conference room

6 p.m.

NLM Board of Regents Dinner
Location – Building 38A; Lobby

Wednesday, Sept. 16

9-10:30 a.m.

NCBI Tutorial—Part Two
Session is part two of a hands-on training to learn best practices for the PubMed, dbGaP, and other NCBI databases.

  • David Lipman, M.D., director, NCBI

  • Peter Cooper, Ph.D., staff scientist, NCBI

Location – Building 38A; B2-14 conference room

10:30-10:40 a.m.

Break

10:40-11:45 a.m.

Kidney Disease—Impact of Diabetes and Obesity
Session will be a presentation and Q&A on diabetes and obesity impact kidney disease

  • Dr. Griffin P. Rodgers, M.D., director, National Institute of Diabetes and Digestive and Kidney Disease 

Location – Building 31; 9th floor conference room

Noon-1 p.m.

Lunch with Donald Lindberg, M.D., director, NLM (informal)
Location – Building 38; Office of the Director

1-2:50 p.m.

Direct-to-Consumer Genome Scans and Personalized Medicine
Session will cover issues related to personalize medicine and preview the NIH Web site being developed to inform the public and health care providers about direct-to-consumer genome scanning services. Organized by Larry Thompson, National Human Genome Research Institute (NHGRI), who was a science and medical writer at The Washington Post and directs NHGRI's communications office.

  • Larry Thompson, director, Office of Communications and Public Liaison, NHGRI

Location – Building 38A; Room B1N30

2:50-3 p.m.

Break

3-4 p.m.

Health Services Research and Healthcare Technology
Session will include training on Health Services Research Projects in Progress (HSRProj), a database of citations to research-in-progress funded by federal, state, private organizations, as well as foundation grants and contracts. The National Information Center on Health Services Research and Health Care Technology (NICHSR) is a gateway to information about health policy issues as the agency specializes in health services research and health care technology.   

  • Lisa Lang, director, NICHSR

Location – Building 38A; 4th floor conference room

4 p.m.  

End of the day; on your own

Thursday, Sept. 17

9-10 a.m.

Genetics Home Reference Tutorial.
Hands-on training for the Genetic Home Reference, a database of genetic conditions and the genes or chromosomes related to those conditions.

      • Stephanie Selmer, content developer lead, Genetics Home Reference
      • Michelle Snyder, content developer, Genetics Home Reference

Location – Building 38A; 7th floor conference room

10-10:10 a.m.

Break

10:10-11:30 a.m.

Future of Personalized Health Records
Session will explain the prospects for personalized health records and tailored medical information and care. Dr. McDonald developed one of the nation's first interoperable medical record systems in Indianapolis when he was on the faculty of Indiana University School of Medicine.

  • Clement J. McDonald, M.D., director, Lister Hill National Center for Biomedical Communications, NLM

Location – Building 38A; 7th floor conference room

Noon-1 p.m.

Lunch with John J. McGowan, Ph.D., deputy director for science management, National Institute of Allergy and Infectious Diseases (NIAID) (informal)
Location – Building 31; Room 7A03

1-2 p.m.

AIDS and other Infectious Diseases
Presentation and Q&A on National Institute of Allergy and Infectious Diseases.

  • Anthony Fauci, M.D., director, NIAID

Location – Building 31; Room 7A03

2:30-3:15 p.m.

Evaluation and Q&A
Location – Building 38; Board of Regents Room