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AHCJ-NLM Fellowships: Sample agenda

AHCJ-NLM Health Journalism Fellowships

The Association of Health Care Journalists has teamed up with the National Library of Medicine to present the AHCJ-NLM Fellowships. AHCJ selects journalists to spend a week on the campus of the National Institutes of Health in Bethesda, Md.

Tuesday

9-9:30 a.m.

Welcome to NLM

  • Patti Brennan, Ph.D., R.N., director, National Library of Medicine

9:30-10:15 a.m.

Reviewing the websites you will explore during the fellowship

  • Robert A. Logan, Ph.D., communication research scientist, NLM

10:15-10:30 a.m. – Break

10:30 a.m.-Noon

MedlinePlus tutorial 1 – Session provides training on how to better use MedlinePlus, which contains information on more than 900 diseases and conditions.

  • Fedora Braverman, L.S., reference librarian, MedlinePlus.gov

Noon–1 p.m. - Lunch

1:15-2:15 p.m.

Overview of NLM

  • Kathleen Cravedi, M.S., director, Office of Communications & Public Liaison, NLM

  • Robert A. Logan, Ph.D., communication research scientist, NLM

2:15-3:25 p.m.

Tour of NLM

  • Tara Mowery, chief, visitor operations, Office of Communications and Public Liaison, NLM

3:30-5 p.m.

ClinicalTrials.gov tutorial – Hands-on training in using and mining ClinicalTrials.gov, a registry of federally and privately supported clinical trials conducted in the United States and around the world.

  • Deborah Zarin, M.D., director, Clinicaltrials.gov, NLM 


Wednesday

9-10:30 a.m.

Genetics Home Reference tutorial – Hands-on training for the Genetics Home Reference, a database of genetic conditions and the genes or chromosomes related to those conditions.

  • Heather Collins, content developer, Genetics Home Reference, NLM 

  • Kathleen Greenberg, Ph.D., content developer, Genetics Home Reference

10:30-10:45 a.m. – Break

10:45 a.m.-Noon

TOXNET/TOXMAP and Household Products Database tutorial – Session will provide training on how to better use TOXNET/TOXMAP, a collection of toxicology and environmental health databases, and Household Products Database, a database that describes the health effects of more than 8,000 consumer brands. TOXMAP was redesigned in 2014.

  • Shannon Jordan, M.P.H., technical information specialist, Specialized Information Services, NLM

Noon-1 p.m. – Lunch with National Center for Biotechnology Information (NCBI) officials (informal)  

1-1:30 p.m. – Break

1:30-3 p.m.           

PubMed Health tutorial – Hands-on training to learn how to access and mine systematic reviews plus similar, comprehensive evidence-based medical/public health resources from PubMed Health.

  • Hilda Bastian, lead editor, Clinical Effectiveness Resources and PubMed Health, NCBI and PubMed Commons, NLM 

3-3:15 p.m. – Break

3:15-4:45 p.m.

Patient-Centered Outcomes Research Institute (PCORI) – Overview of comparative effectiveness research (CER) and methodology; what makes for good studies and reliable results; the uses of CER evidence for clinical decision making; the move to patient- and stakeholder-driven health research and its impacts.

  • Chris Gayer, Ph.D., program officer of dissemination and implementation, PCORI

  • Kara Odom Walker, M.D., M.P.H., M.S.H.S., deputy chief science officer, PCORI


Thursday

9-10:30 a.m.

PubMed tutorial – Hands-on training on using PubMed

  • Katherine Majewski, librarian, trainer, and technical writer, Library Operations, NLM 

10:30-10:45 a.m. – Break

10:45 a.m.-12:15 p.m.

Health Services Research and Healthcare Technology – Training on Health Services Research Projects in Progress (HSRProj), a database of citations to research-in-progress funded by federal, state and private organizations, as well as foundation grants and contracts. The National Information Center on Health Services Research and Health Care Technology (NICHSR) is a gateway to information about health policy issues; the agency specializes in health services research and health care technology.

  • Lisa Lang, head, NICHSR, NLM

12:15-1:30 p.m. – Lunch

1:30-3 p.m.

PDQ and other National Cancer Institute resources

  • Shannon P. Hatch, chief, Media Relations Branch, Office of Communications and Public Liaison, National Cancer Institute

  • Robin Juthe, M.P.H., technical information specialist, Office of Communications and Public Liaison, National Cancer Institute 

3-3:15 – Break

3:15- 4:30 p.m.

Disaster information management – How to get information to providers and the public in a disaster.

  • Stacey Arnesen, head, Disaster Information Management Research Center, Specialized Information Services, NLM

4:30-5 p.m.

The need for libraries and evidence-based consumer health information

  • Donald A. B. Lindberg, M.D., director emeritus, NLM (1984-2015)


Friday

 9-10:30 a.m.

Tour of NIH

  • Tara Mowery, chief, visitor operations, Office of Communications and Public Liaison, NLM

10:45 a.m.-Noon

Insights into the process of awarding research grants: How NLM and NIH make funding decisions

  • Milton Corn, M.D., deputy director, NLM

Noon-12:45 p.m. – Lunch

12:45-2 p.m.

Extent of the nation’s health disparities and interventions research

  • Regina James, M.D., director of clinical and health services research, National Institute on Minority Health and Health Disparities, NIH

2 p.m. – Evaluation


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Speaker Bios

STACEY ARNESEN is branch chief of the Disaster Information Management Research Center, Specialized Information Services, National Library of Medicine. Previously, she was adviser for special projects and coordinated the Central American Network for Disaster Health Information with the Pan American Health Organization and the Regional Disaster Information Center in Costa Rica. She has been a member of the Bethesda Hospitals' Emergency Preparedness Partnership. She has worked for NLM’s HIV/AIDS information services and headed the TOXNET search team. 301-496-2971, stacey.arnesen@nih.hhs.gov

HILDA BASTIAN is the lead editor for clinical effectiveness resources and PubMed Health, National Center for Biotechnology Information, and for PubMed Commons, the commenting system in PubMed. She has been involved in systematic reviewing and communicating about evidence for more than 25 years. Bastian was among the founding group of the Cochrane Collaboration, and led the Health Information Department at Germany’s national health technology agency before joining the NCBI in 2011. 301-402-7381, hilda.bastian@nih.gov

FEDORA BRAVERMAN is responsible for developing and maintaining MedlinePlus and MedlinePlus en español. Her duties include topic development, quality control of the licensed content, collection development, translation of consumer health information into Spanish, news selection, and testing system upgrades. Fedora previously worked as a consultant for the U.S. State Department and the Hispanic Division at the Library of Congress. She began her career as an information specialist in the Information Resource Center at the U.S. Embassy in Buenos Aires, Argentina. 301-827-7102, Fedora.Braverman@nih hhs.gov

PATRICIA BRENNAN, R.N., Ph.D., became the director of the National Library of Medicine in fall 2016. Brennan was the Lillian S. Moehlman-Bascom professor, School of Nursing and College of Engineering at the University of Wisconsin-Madison. She also led the Living Environments Laboratory at the Wisconsin Institute for Discovery, which develops new ways to effectively visualize high dimensional data. A recipient of many awards, Brennan is a past-president of the American Medical Informatics Association, a member of the National Academy of Medicine, and a fellow of the American College of Medical Informatics, the American Academy of Nursing, and the New York Academy of Medicine. patti.brennan@nih.gov

HEATHER COLLINS, M.S., develops content for Genetics Home Reference. She has done several genetic counseling internships at hospitals and clinics around the greater Washington metro area. She joined the NLM in 2007 as a contractor for the Genetics Home Reference website, working as a content developer. Collins researches, writes, and reviews plain language summaries on genetic conditions, genes, chromosomes, and gene families. She collaborates with outside experts in the field of medical genetics and utilizes web-based resources, both educational and advocatory. 301-827-4941, Heather.Collins@nih.hhs.gov

MILTON CORN, M.D., F.A.C.P., F.A.C.M.I., is deputy director for research and education at the National Library of Medicine. Prior to his service at NLM, Corn served as professor of medicine at Georgetown University, where he held a number of leadership positions. He joined NLM in 1990 as director of the extramural programs division, with responsibility for all aspects of NLM's grant programs. As deputy director for research and education, he serves as principal medical advisor on research and development and medical education priorities, and provides direction and advice on the full range of NLM's intramural and extramural research portfolio. 301-496-4726, cornm@mail.nih.gov

KATHY CRAVEDI was appointed director of the Office of Communications & Public Liaison in 2008 after serving as deputy director from 1996-2008. Cravedi came to the NLM in 1994, after specializing in health care issues as a Capitol Hill staffer, beginning in 1975. 301-496-6308, Kathleen.Cravedi@nih.hhs.gov

CHRIS GAYER, Ph.D., is a program officer for dissemination and implementation, at the Patient-Centered Outcomes Research Institute. He helps to facilitate the translation, dissemination, and implementation of PCORI research findings to increase the awareness, adoption, and use of PCORI research results. Prior to this role, Gayer worked as a program officer in PCORI’s Communication and Dissemination Research program and oversaw initiatives aimed at improving communication and dissemination of evidence-based information among patients and their health care providers. Gayer has had a leadership role in PCORI’s initiatives related to cancer, palliative care, shared decision making, and the development and use of decision aids. Gayer worked as research director at the Cancer Support Community, Research and Training Institute, conducting community-based research studies with a focus on cancer-related distress screening, treatment decision making, and the cancer patient experience.  cgayer@pcori.org

KATHLEEN GREENBERG, Ph.D., is a science writer for Genetics Home Reference. She has an extensive research background in cancer genetics and molecular and cellular biology. She was a contract editor for American Journal Experts and a science policy fellow at Research@America. 301-827-4943, Kathleen.greenberg@nih.hhs.gov

SHANNON P. HATCH is chief of the Media Relations Branch within the National Cancer Institute’s (NCI) Office of Communications and Public Liaison. She oversees a team of press officers who serve as points of contact for all media inquiries about NCI's research programs and activities. Prior to joining NCI in 2009, she worked for the Association of American Cancer Institutes (AACI) for nearly ten years. 301-496-6526, ncipressofficers@mail.nih.gov   

REGINA JAMES, M.D., is director of clinical and health services research for the National Institute on Minority Health and Health Disparities at the National Institutes of Health. She provides leadership to strengthen the direction of NIMHD’s research, which emphasize projects on minority health and health disparities in clinical settings, health services research, patient-clinician communication, and understanding and addressing how individual and population-level determinants affect health status, access and quality of health care across the lifespan. 301 496-3462; rjames@mail.nih.gov

SHANNON JORDAN is a chemist with the NLM’s Specialized Information Services. Her primary responsibility is to develop and maintain chemical data for the Hazardous Substances Data Bank and ChemIDplus databases as a part of the environmental health and toxicology information program. She also provides training in searching NLM’s environmental health and toxicology databases and participates in outreach activities to increase knowledge and access to NLM biomedical and consumer health resources. 301-827-5667, Shannon.Jordan1@nih.hhs.gov

ROBIN H. JUTHE, M.P.H., C.P.H., is a technical information specialist in the National Cancer Institute's Office of Communications and Public Liaison. She manages NCI’s Physician Data Query (PDQ®) Cancer Genetics Editorial Board, which develops and maintains evidence-based information about inherited cancer genetics for health professionals on NCI’s website. She contributes to other PDQ content, including cancer information summaries written for patients, biomedical illustrations, and NCI’s Dictionary of Cancer Terms and Dictionary of Genetics Terms. 240-276-6592, robin.juthe@nih.gov

LISA LANG is head of the National Information Center on Health Services Research and Health Care Technology and assistant director of Health Services Research Information. Lang leads the Partners in Information Access for the Public Health Workforce, is part of the steering committee for the Community Health Status Indicators project and is a member of the Council on Linkages between Academia and Public Health Practice. She is involved in NLM's health data standards development activities. Before joining the NLM, Lang worked in the Centers for Medicare and Medicaid Services where she was at the forefront of the agency's implementation of the public-private collaboration to promote public reporting on hospital quality of care. 301-496-0176; langl@nlm.nih.gov

DONALD A. B. LINDBERG, M.D., is the director emeritus of the National Library of Medicine. Lindberg was the director of the National Library of Medicine from 1984-spring 2015. From 1992-1995 Lindberg served in a concurrent position as founding director of the National Coordination Office for High Performance Computing and Communications in the Office of Science and Technology Policy, Executive Office of the President. Before his appointment as NLM director, he was professor of information science and professor of pathology at the University of Missouri. He has appointments as clinical professor of pathology at the University of Virginia and adjunct professor of pathology at the University of Maryland School of Medicine. Lindberg was elected the first president of the American Medical Informatics Association and serves on the Computer Science and Engineering Board of the National Academy of Sciences, the National Board of Medical Examiners, and the Council of the Institute of Medicine of the National Academy of Sciences. Lindberg is the author of three books: “The Computer and Medical Care,” “Computers in Life Science Research” and “The Growth of Medical Information Systems in the United States.” donald.lindberg@gmail.com

ROBERT A. LOGAN, Ph.D., is a communication research scientist and a member of the NLM’s senior staff. Logan also is a professor emeritus at the Missouri School of Journalism. He joined the NLM in February 2003 and directs research for the Office of Communications and Public Liaison. Logan writes and narrates weekly podcasts, the “NLM Director’s Comments.” He also oversees a portfolio of consumer health informatics and health literacy research contracts and frequently speaks to journalism organizations about using NLM and other evidence-based biomedical resources. 301-827-6471, logan@nlm.nih.gov    

KATHERINE MAJEWSKI, M.L.S., is a librarian, trainer, and technical writer for NLM. Majewski specializes in teaching librarians and other information professionals about PubMed and related NLM resources. She has worked in libraries for more than 25 years. 301-827-5061 1; Kate.Majewski@nih.hhs.gov    

TARA MOWERY is the chief of visitor operations in NLM’s Office of Communications and Public Liaison.  She joined the NLM Communications Office after spending seven years as the branch chief for the NIH Visitor Center. In addition to running the NIH tour program, Mowery was the chief of special events for the NIH Office of the Director and worked directly with the advance teams of Bill Gates, His Holiness the Dalai Lama, and President Obama to ensure that their visits to the NIH went seamlessly. She began her NIH career 25 years ago at the National Cancer Institute. Since then she has held positions with five of the 27 NIH Institutes, including four years as NIH Director Elias Zerhouni’s executive assistant. 301-827-6479, moweryta@nlm.nih.gov

KARA ODOM WALKER, M.D., M.P.H., M.S.H.S., is the deputy chief science officer at the Patient-Centered Outcomes Research Institute. She oversees PCORI’s long-term research investments as part of the institute’s leadership team. A family physician with health services and community-based participatory research training, Walker previously was assistant clinical professor in family and community medicine at the University of California, San Francisco, where she created measurement instruments to better understand integrated care in health systems for diverse populations. As a Robert Wood Johnson Clinical Scholar at the University of California, Los Angeles, she conducted research on the impact of hospital closure on underserved, minority populations. She continues to see primary care patients in a local clinic for the uninsured. kwalker@pcori.org

DEBORAH ZARIN, M.D., is director of clinicaltrials.gov in the NLM’s Lister Hill National Center for Biomedical Communications. Zarin oversees the development and operation of an international registry and results reporting system for clinical trials, and the corresponding implementation of legal and other trial reporting policies. Zarin has been director, technology assessment program, at the Agency for Healthcare Research and Quality, and the director of the Practice Guidelines program at the American Psychiatric Association. 301-402-0650, dzarin@mail.nih.gov