National Post-acute and Long-term Care Study (NPALS) — From the CDC’s National Center for Health Statistics. This ongoing study monitors trends in the supply, provision, and use of the major sectors of paid, regulated long-term care services, including residential care community and adult day services sectors, and administrative data on the home health, nursing home, hospice, inpatient rehabilitation, and long-term care hospital sectors. Note – almost all information is in pdf format so reporters interested in crunching numbers will need to contact CDC for access to specific data sets.
Antibiotic Stewardship in Long-Term Care Facilities
The Pew Trusts Antibiotic Resistance project offers important and timely background information and analysis on the challenges of treating infections in nursing homes. Well sourced, with links to relevant studies.
The Financial Hardship Faced by Older Americans Needing Long-Term Services and Supports – new issue Brief from the Commonwealth Fund – 2019 issue brief from the Commonwealth Fund.
Beneficiaries with high long term services and supports needs have higher Medicare and out-of-pocket spending than those without such needs and are more likely to report that medical care makes up part of their credit card debt. Those with high LTSS needs are also more likely to report trouble paying for food, rent, utilities, medical care, and prescription drugs. Many older Medicare beneficiaries using LTSS are vulnerable to incurring substantial costs. Without an affordable, sustainable financing solution, Medicare beneficiaries with LTSS needs will continue to be at greater risk of delaying necessary care, being placed in a nursing home prematurely, and having to “spend down” into the Medicaid program
Compare Long Term Care Costs Across the United States – from Genworth Financial: The Genworth Cost of Care Survey details the costs of different types of care in various locations. The 2017 survey covered 440 regions across the United States. Released October, 2017.
State Medicaid Integration Tracker: Published by the National Association of States United for Aging and Disabilities (NASUAD) which keeps tabs on managed long-term services & supports, state demonstration projects and other LTSS activities.
Long Term and supportive care – September 2016 report from McKinsey on how the government, private payers, providers, and technology companies are innovating to address individuals with complex medical and supportive care needs.
Long-Term Services and Supports: Changes and Challenges in Financing and Delivery: This Alliance for Health Reform toolkit explains the current LTSS system, trends in the delivery of care and the current policy challenges.
The toolkit includes:
- An overview of funding for LTSS
- Summaries of, and links to, key reports and news articles
- Contact information for leading experts (current as of June 2015)
Raising Expectations, 2014: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers: In June 2014, AARP, The Commonwealth Fund and The SCAN Foundation released their second long term care scorecard, a state-by-state breakdown of performance of long-term services and supports that help older adults, adults with disabilities and their family caregivers. The rankings looked at 26 performance indicators within five dimensions of care for each of the 50 states, plus the District of Columbia and classifies them against each other.
With the Balancing Incentive Program, the Affordable Care Act provides states with program funding intended to remove barriers to home-and community-based LTSS. This page explains the program and provides links to proposals from states requesting funding — with detailed program and financials. It provides information on what individual states hope to enact around community-based long-term care services.
LongTermCare.com allows you to look up the cost of various long-term care services by state. While it’s industry sponsored, the data is useful. Also included here is information about various state long-term care insurance partnerships.
A survey compares how states do when it comes to providing long-term services and support to vulnerable seniors and people with disabilities.
The National Care Planning Council has a website that offers information about finding long-term care services and planning for long-term care.
The National Council on Aging is an essential resource for all things related to aging. Search by topic for more information at their site.
National Association of State Long-Term Care Ombudsman Programs.
The National Consumer Voice for Quality Long-Term Care
CompleteLongtermCare.com allows you to look up the cost of various long-term care services by state. While it’s industry sponsored, the data is useful. Also included here is information about various state long-term care insurance partnerships.
A guide to long-term care insurance from America’s Health Insurance Plans, an industry source.
MetLife Mature Market Institute 2011 Market Survey of Long-Term Care Costs.
Congressional hearings held after the Obama administration terminated a national long-term care insurance program.
Medicare doesn’t pay for custodial care; it only pays for medically necessary care at home or in a skilled nursing facility, under limited circumstances.
See an in-depth look at Medicaid and long-term care.
A 2009 report from the Kaiser Family Foundation: Closing the Long-Term Care Funding Gap: The Challenge of Private Long-Term Care Insurance
Below are some materials on long-term care.
- Long-Term Care Workforce
- You Can Run, but You Can’t Hide: Policy and Problems in Long-Term Care
- Using Nursing Home Compare
- Inspection reports reveal deficiencies in assisted-living care
- Seniors for Sale
- Long-Term Care Insurance: Hearing and GAO report
- You Can Run, but You Can’t Hide: Policy and Problems in Long-Term Care
At the Crossroads: Providing Long-Term Services and Supports at a Time of High Demand and Fiscal Constraint is a report from AARP Public policy Institute analyzes challenges facing states as the demand for long term care services and support (LTSS) increases. While some Medicaid-funded services expand under the Affordable Care Act, many other LTSS program budgets are being slashed – like those for transportation, home delivered meals, and senior centers.
Full report (53 pages); Issue Brief (2 pages) and ChartPak (30 pages).