1. Provide the title of your story or series and the names of the journalists involved.
Life-or-death coin toss, by Elizabeth Simpson Photos and video by Todd Spencer and Brian Clark
2. List date(s) this work was published or aired.
Nov. 21, 2010
3. Provide a brief synopsis of the story or stories, including any significant findings.
Explores the psychological terrain of one family and their decisions regarding genetic testing to determine whether they have Huntington's Disease, an incurable brain disorder.
4. Explain types of documents, data or Internet resources used. Were FOI or public records act requests required? How did this affect the work?
Research about genetic testing, Huntington's Disease, and the psychological impact of making a decision to be tested in cases where there is no cure.
5. Explain types of human sources used.
Interviewed various members of the same family, and spent time with a family member who has been through testing and been diagnosed with HD
6. Results (if any).
Outpouring of response from families with the disease and how genetic testing has had an impact on their families.
7. Follow-up (if any). Have you run a correction or clarification on the report or has anyone come forward to challenge its accuracy? If so, please explain.
No corrections or clarifications.
8. Advice to other journalists planning a similar story or project.
Find a family who is very open about talking about all the emotional aspects of this disease, and who is not afraid to talk about the symptoms of the disease.