Hospice care is supposed to ease the final days for those at the end of their life, as well as their families. Sadly, it is not always the case. When hospice caregivers don’t show up, desperate calls to agencies go unanswered and loved ones are in pain, it is family caregivers who must cope, frightened and alone.
The result is what Kaiser Health News Executive Editor Elisabeth Rosenthal calls “DIY hospice care:” It is not an issue that has received much attention, but a recent investigation by KHN reporters JoNel Aleccia and Melissa Bailey found that it happens more frequently than many suspect. Continue reading
An op-ed in the October 4 issue of the New York Times reinforces the need for compassionate and comprehensive support for end-of-life care that spares dying patients and their families from pointless and confusing bureaucracy and needless expenses.
The editors point to Nina Bernstein’s recent article about a daughter that just wanted to honor her dying father’s wishes and bring him home. It’s the kind of reporting that strikes a personal and emotional chord with many readers. The editors also highlight new efforts in New York State designed to alleviate some of these challenges.
Sally Quinn’s discussion about Ben Bradlee’s battle with dementia and his admission to hospice care in a recent Politico story also resonates through use of powerful narrative and quotes.