Tag Archives: fungus

Lack of awareness of Valley fever is the disease’s biggest danger

Tristan Ettleman

About Tristan Ettleman

Tristan Ettleman, a Cronkite News digital reporter on the futures beat, covers the intersection of technology and society. His portfolio includes a story on the revolution of block chain, the tech behind cryptocurrency, in the medical field and other industries.

Photo by Tristan Ettleman/Cronkite News“Time is lost and the patient gets worse,” Valley fever patient Jim Meenaghan said of physicians’ unfamiliarity with the disease.

PHOENIX — Doctors can misdiagnose Valley fever, a fungal disease that lurks behind common symptoms like coughs and fatigue, because many aren’t familiar with the respiratory disease, medical experts said. And that could prolong patient suffering.

Misdiagnoses not only hinder Valley fever recovery, they can make it worse, said John Galgiani, director of the Valley Fever Center for Excellence in Tucson. Galgiani is speaking about the dangers of the respiratory disease on Sunday at the Association of Health Care Journalists conference, Health Journalism 2018, in Phoenix. Continue reading

Health officials clashed over alerting public to fungal infection in wake of Joplin tornado

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ's social media efforts and edits and manages production of association guides, programs and newsletters.

Following the devastating tornado in Joplin, Mo., county public health officials found themselves in conflict with state officials about alerting the public to an aggressive fungal infection that was showing up in people who were injured in the storm and its aftermath.

According to emails obtained by Sarah Okeson of the Springfield, Mo., News-Leader, state officials were concerned about panicking the public and declined to issue the alert.

joplin-hospital

Photo by Red Cross: Carl Manning GKCARC via Flickr

Local officials, on the other hand, say they wanted to “ensure that any hospital/health care provider would recognize the illness in a timely manner and begin aggressive anti-fungal treatment.” Faced with a denial from the state, the local officials issued a limited alert to 43 health care contacts and to health care providers.

A week after the county’s request – and two days after the News-Leader ran a story written by Okeson about the fungal infections – the state issued a health advisory.

The infections drew the interest of federal officials, including Benjamin Park, who leads an epidemiology team at the U.S. Centers for Disease Control. Park repeatedly emailed acting state epidemiologist Dr. George Turabelidze offering assistance and emphasizing that “There could be some important public health information that is obtained from this (risk factors, exposures, environmental sampling?) that would be important for future disaster events.” In one email, Park refers to receiving “inquiries all the way up to HHS secretary about this.”

Guidance for releasing information in a public health crisis

The Association of Health Care Journalists recently worked with the Association of State and Territorial Health Officials (ASTHO) and the National Association of County and City Health Officials (NACCHO) to develop guidelines for releasing information in a public health crisis.

“Stories like these raise questions about how public health agencies respond to outbreaks,” said Charles Ornstein, president of AHCJ’s board of directors. “That’s why I’m particularly glad that AHCJ has worked alongside ASTHO and NACCHO to come up with guidance about the type of information that should be released in public health emergencies. Working collaboratively, journalists and public health officials can improve the information shared during outbreaks and earn the public’s trust.”

The guidelines include advice to health official to consider publicizing an illness or death when “A major epidemic or novel illness is emerging, or a natural disaster or other major event affecting public health has occurred or is anticipated.”

The guidance emphasizes the importance of openness, stating that information should be withheld only when there is a clearly justified reason.

Related