Tag Archives: consent

How a debate over patient consent rules led to a book on vaccine history

About Bara Vaida

Bara Vaida (@barav) is AHCJ's core topic leader on infectious diseases. An independent journalist, she has written extensively about health policy and infectious diseases. Her work has appeared in the National Journal, Agence France-Presse, Bloomberg News, McClatchy News Service, MSNBC, NPR, Politico, The Washington Post and other outlets.

The story of how cancer cells belonging to Henrietta Lacks were used, without her consent, became one of the most important foundations of research was told in the 2010 book “The Immortal Life of Henrietta Lacks. But less-known is the story of how another key set of cells was developed from fetal tissue and used in vaccine testing on patients without their consent.

Meredith Wadman tells this story of controversy in her 2017 book, “The Vaccine Race: Science, Politics, and the Human Costs of Defeating Disease.” She found the story just by reading a letter-to-the-editor about patient consent in the publication Science. Continue reading