New tip sheet examines issues surrounding brain death

Liz Seegert

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Photo: Indi Samarajiva via Flickr
Photo: Indi Samarajiva via Flickr

Are there different levels of death? Are you alive if you’re brain dead but on life support?

Many journalists and members of the public are unclear about the nuances of brain death. According to this new tip sheet from author and researcher Alan Cassels, this confusion directly affects issues such as organ donation rates.

Cassels notes that while a patient’s organs can be “kept alive” while awaiting transplantation, brain death is legally the same as cardiopulmonary death – death is death. It matters because the organ donor transplant list keeps growing.

Only three of every 1,000 people die in a way that allows for organ donation, according to the Health Resources and Services Administration, the government agency that tracks transplant statistics. Meanwhile, nearly two-thirds (65.3 percent) of those waiting for organs are age 50 or older. The problem, Cassels writes, is that not clearly understanding and reporting brain death can have a “profound effect on the willingness of relatives to consider organ donations from their just-deceased loved ones.”

Cassels’ tip sheet highlights two high-profile cases in which journalists misinterpreted brain death and ended up reporting erroneous information. That muddies the issue for the public. The tip sheet includes some easy-to-understand definitions of brain death, life support, persistent vegetative state and coma — all different medical states. It also provides some excellent resources for journalists who may find themselves immersed stories, such as this one, about the particulars of someone who is declared brain dead but described as on life support.

Liz Seegert

Liz Seegert

Liz Seegert is AHCJ’s health beat leader for aging. She’s an award-winning, independent health journalist based in New York’s Hudson Valley, who writes about caregiving, dementia, access to care, nursing homes and policy. As AHCJ’s health beat leader for aging,