Helpful Links
Explore a collection of hand-selected, valuable links for health care journalists.
Helpful Links
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- Medical Studies
The Disability Language Style Guide is an extremely helpful reference for writing about any kind of disability. This paper in…
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- Aging
Able Data
Able Data provides objective information about assistive technology products and rehabilitation equipment. Their database includes 40,000 assistive technology products classified…
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- Aging
Abuse/mistreatment/exploitation
Expert panel tackles elder abuse at workshop on aging: Liz Seegert writes about a panel on elder abuse at AHCJ’s…
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- Health Policy
ACA litigation
Health reporters spend a lot of time tracking ACA litigation (especially but not exclusively the Texas lawsuit that aims to…
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- Insurance
Academic centers
The Becker Friedman Institute for Economics publishes research and analysis from researchers at the University of Chicago’s Booth School of…
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- Health IT
Academic centers
Artificial Intelligence in Medicine division at Cedars-Sinai Medical Center – group that explores how AI can be applied to help…
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- Health Policy
Academic centers
Poverty Solutions at the University of Michigan says poverty and health are closely intertwined because families and individuals with low-incomes…
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- Health Equity
Academic Research Centers
Institute for the History of Psychiatry at the Weill Medical College of Cornell University Medical historian Megan Wolff runs the…
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- Infectious Diseases
Academic research centers
Center of Excellence in Influenza Research and Surveillance Founded at St. Jude Children’s Research Hospital in Memphis, Tenn. The World…
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- Aging
Adult Day Care Center Use
Differences in Adult Day Services Center Participant Characteristics by Center Ownership: United States, 2012 The National Center for Health Statistics…
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- Aging
Advance directives
Some websites offer introductions to and advance directives. General information about advance directives can be found at healthfinder.gov. American Bar…
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- Aging
Advance directives
Some websites offer introductions to and advance directives. POLSTs are primarily for those with serious life-threatening illnesses or advanced life-limiting…
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- Infectious Diseases
Advocacy and nonprofit groups
Alliance for the Prudent Use of Antibiotics Located on the campus of Tufts University Medical School, this international group supports…
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- Health Equity
Advocacy and Opinion
Zero to Three: A Washington-based advocacy group, Zero to Three focuses on policies affecting infants and very young children. The…
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- Insurance
Advocacy groups
California Health Advocates provides information for journalists and consumers on Medicare, Medicare supplemental coverage and long-term-care insurance. While the program…
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- Health IT
Advocacy groups
Center for Medical Interoperability – working to advance data sharing in medicine, founded by health systems EHR Association (EHRA) –…
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- Firearm Violence
Advocacy Organizations
Brady Center to Prevent Gun ViolenceThis group is a nonprofit focused on preventing firearm violence. Among their initiatives are efforts…
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- Health Equity
Affordable Care Act
IOM Summary: Achieving Health Equity via the Affordable Care Act This December 2015 report follows an Institute of Medicine workshop…
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- International
African Resources
These resources can enable journalists to find information. To contribute additional sources or suggest a relevant health topic, send a…
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- Aging
Ageism
Websites OldSchool.info –contains all of the resources that follow, and is the one-stop go-to for all things ageism-related HelpAge International…
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- Aging
Agencies on Aging
National Survey of Area Agencies on Aging 2020 Report and Toolkit n4a worked with Scripps Gerontology Center at Miami University…
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- Health Equity
Aging
The Center for Brain Health Equity created by UsAgainstAlzheimer’s with a $1.5 million cooperative agreement with the CDC Healthy Brain…
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- Aging
Aging in place
All Together Now: Integrating Health and Community Supports for Older Adults Brief from American Institutes for Research’s Center on Aging. First in…
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- Aging
Alzheimer’s disease & dementia
Today’s Research on Aging: The Demography of Dementia and Dementia Caregiving — A report from the Population Reference Bureau summarizes…
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- Aging
Anti-aging medicine
Adverse Events Associated with Testosterone Administration Latest research on Resveratrol National Institute on Aging began a national trial of testosterone…
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- Aging
Antibiotics
Antibiotic Stewardship in Long Term Care Facilities — from Pew Trusts Antibiotic Resistance project — important and timely backfround information…
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- Medical Studies
Articles about medical studies
While age and race/ethnicity are nearly always reported in the baseline characteristics of Table 1 in a medical study, socioeconomic…
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- International
Asian Resources
These resources can enable journalists to find information. To contribute additional sources or suggest a relevant health topic, send a…
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- Aging
Assisted living
National Center for Assisted Living Facts & Figures: A page full of vetted sources for information about assisted living, including…
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- COVID-19
Background
The Associated Press addresses style questions. Columbia Journalism Review on “How to name a coronavirus” CJR report on “The new…
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- Health Equity
Behavior and Individual Risk Taking
The National Institute on Drug Abuse funded the RAND Opioid Policy Tools and Information Center (OPTIC) to develop reliable data,…
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- Aging
Biology and genetics
Here are a couple of presentations from AHCJ annual conferences. George M. Martin (M.D., professor emeritus, Department of Pathology, University…
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- Infectious Diseases
Books
Big Chicken: The Incredible Story of How Antibiotics Created Modern Agriculture and Changed the Way the World Eats Journalist and…
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- Aging
Brain health
Brain Health Data: The National Alzheimer’s Disease Index is a public health tool that aggregates Medicare data and enables visualization…
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- Health IT
Brain-computer interface
BrainGate – Collaborative of researchers from Brown, Emory, Massachusetts General Hospital, Stanford, UC Davis, and the Department of Veterans Affairs…
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- Medical Studies
Burden of disease
To better understand disability-adjusted life years (DALYs), see this 2013 paper on one approach to it and this deep dive…
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- Health Policy
Calculators
ProPublica has launched a web app that allows consumers – and journalists – to look up their current plan to…
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- Aging
Cancer
Researchers from the University of Pennsylvania Perelman School of Medicine compared the health care experience for cancer patients older than…
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- Aging
Cardiovascular disease
AHA Statistical Update Heart Disease and Stroke Statistics 2013 Update; A Report From the American Heart Association CDC Interative Atlas…
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- Aging
Caregiving
American Association of Caregiving Youth More than a million children under 18 care for a parent, grandparent or other relative with…
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- Patient Safety
Case studies
Agency for Healthcare Research and Quality: Real-life examples of safety scenarios are described in Impact Case Studies. An online web…
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- Aging
Centenarians
New England Centenarian Study, billed as the longest and largest study of people over age 100, began in 1995 as…
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- Health Policy
Center for Consumer Information and Insurance Oversight
The Center for Consumer Information and Insurance Oversight (CCIIO) oversees the implementation of various ACA provisions related to private health insurance,…
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- Mental Health
Child and adolescent mental health
American Psychological Association, which has published special guidance on youth mental health during Covid-19. Black School Psychologists and the Association…
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- Health Equity
Childhood Environment
Lead in U.S. drinking water: SciLine has a fact sheet, with sources, that outlines the background of lead in tap…
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- Aging
Chronic pain/disease
Chronic Disease Indicators for older adults: The chronic disease indicators (CDI) are uniformly defined state and selected metropolitan-level data for…
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- Aging
Clinical Diagnosis of Osteoporosis
This is a position paper from the National Bone Health Alliance Working Group, a public-private partnership of 56 partners from…
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- Medical Studies
Clinical guidelines
International Classification of Diseases: The CDC has excellent pages that describe and explain the International Classification of Diseases, Tenth Revision, Clinical…
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- Medical Studies
Clinical trials
Plenty of sites provide overviews of the phases of clinical trials, but this one at the American Cancer Society is…
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- COVID-19
Clinical Trials
More than two dozen vaccines are under development, and dozens of trials are underway to investigate whether any experimental or…
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- Aging
CMS Fast Facts
CMS has released a new quick-reference statistical summary on annual CMS program and financial data. The November fact sheet includes…
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- Health Policy
Co-ops
For background on what a co-op is, and some examples of successful ones that predate the Affordable Care Act, see…
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- Aging
Cognitive aging
Cognitive Aging: Progress in Understanding and Opportunities for Action: Forgetfulness at older ages is often equated with a decline in…
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- Aging
Communicating with older adults
California Assisted Living Association Age-Friendly Language Guide — What we say and how we say it can either be age-friendly…
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- Health Policy
Community health centers
National Association of Community Health CentersCommunity health centers are expanding, because of the health reform law and funding made available…
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- Health Equity
Community Health Status Indicators (CHSI)
The Neighborhood Atlas is a free mapping tool of the Centers for Health Disparities Research, an institution that’s part of…
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- Health Policy
Community Health Status Indicators (CHSI)
This website produces public health profiles for all 3,143 counties in the United States. Each profile includes key indicators of…
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- Medical Studies
Comparative effectiveness research
Toolkit: Right Care, Right Patient, Right Time: Comparative Effectiveness Research in the U.S.: In 2019, the Alliance for Health Policy coordinated…
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- Insurance
Consultants
Many consultants specializing in human resources and health care strategies have experts and reports on health policy and health insurance.…
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- Health Policy
Consultants and Legal Groups
Many HR consultancies, investment groups, and law firms have health policy resources (reports, webcasts, etc.) that are available to reporters,…
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- Health IT
Consulting firms
Frost & Sullivan – Consulting and research group that releases reports on HIT. The Advisory Board Company: Publishes research and…
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- Insurance
Consumer associations
Integrative Health Policy Institute seeks to eliminate barriers to health by advocating for a health system that promotes and supports…
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- Insurance
Consumer resources
State Health Insurance Assistance Programs (SHIPs) provide local and objective insurance counseling and assistance to Medicare-eligible individuals, their families, and…
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- Infectious Diseases
Coronavirus
The 2019 Novel Coronavirus (2019-nCoV)Recent articles in JAMA reviewed new technologies for rapid vaccine development for emerging viral diseases, effectiveness…
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- Insurance
Costs and pricing
AboutHealthTransparency.org is a nonprofit website that publishes resources and news about health care price transparency. In addition to tracking health…
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- Aging
COVID-19
The New York Times COVID-19 Long Term Care Facility Tracker: The New York Times has been putting together its own database of…
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- Aging
Creativity
National Center for Creative Aging EngAGE (provides arts programs onsite in senior housing communities in Los Angeles area) Elders Share…
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- Insurance
Data aggregators
The Milken Institute COVID-19 vaccine and treatment tracker is compiled from publicly available sources and will grow to include FDA-approved…
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- Aging
Demographics
Aging and Health Datagraphic: from Health Affairs, a visual look at how well older adults achieve goals like aging in…
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- COVID-19
Dentistry
COVID-19 and Dentistry: Challenges and Opportunities for Providing Safe Care: The outbreak of coronavirus disease 2019 (COVID-19) effectively shut down…
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- Aging
Diabetes
NCHS Data Brief: Diabetes: Nearly 10 percent of Americans and 21 percent of adults 65 and over have diabetes. The National…
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- Patient Safety
Diagnostic errors
Diagnostic errors: A primer from the Agency for Healthcare Research and Quality Patient safety and quality improvement from the Agency…
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- Aging
Direct care workers
PHI reports on home care: Annual data on the direct care workforce, including this brief on home care workers and…
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- Aging
Disabilities
Vision Problems in the U.S. from Prevent Blindness: Tracks the prevalence of adult vision impairment and age-related eye disease in…
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- Aging
Disaster planning
Emergency Preparedness for Elderly People – from the National Caregivers Library — a list of supplies to have on hand…
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- Medical Studies
Disease elimination and eradication
The Principles of Disease Elimination and Eradication from the CDC. The principles of disease elimination and eradication by Walter R.…
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- Aging
Disparities
The National Caucus & Center on Black Aging, Inc. — one of the country’s oldest organizations dedicated to aging issues…
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- Medical Studies
Dose response
This ToxTutor link from the NIH describes routes of exposure in greater detail, particularly as it relates to types of…
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- Aging
Drugs and devices
Rx Price Watch report on specialty prescription drugs from AARP, which found that the average annual price for a single…
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- Medical Studies
Drugs/pharmaceuticals
Ten Common Questions (and Their Answers) About Off-label Drug Use covers some of the most common questions, concerns and misunderstandings…
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- Health Equity
Economy & taxes
The intersection of tax policy and health equity This document reflects the content of a Dec. 7, 2017, workshop at…
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- Health Equity
Education & health
Why Education Matters to Health: Exploring the Causes Virginia Commonwealth University Center on Society and Health (2014) The links between…
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- Aging
Elder abuse
National Adult Maltreatment report 2016 – From the Administration for Community Living, the first report of a series based on data…
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- COVID-19
Emergency Health Preparedness
Resolve to Save Lives, a nonprofit led by Tom Frieden, former director of the Centers for Disease Control and Prevention,…
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- Insurance
Employee survey shows that as deductibles and out-of-pocket costs rise, perceived value of benefits falls
A report from benefits consulting firm Mercer shows that health insurance benefits are an important element of employers’ efforts to…
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- Insurance
Employer Coalitions
The Private Exchange Evaluation Collaborative The Private Exchange Evaluation Collaborative (PEEC) was formed in the fall of 2013 to provide…
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- Aging
End-of-life care
End-of-life discussions: Perspective from a nurse who is a patient: Amy Berman – a nurse, a nationally recognized expert in care…
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- Health Equity
Environmental hazards and disparities
ValueofLeadPrevention.org enables policymakers, community leaders and residents to calculate the cost of childhood lead exposure in their state and the…
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- Medical Studies
Epidemiology
This slideshare, “Basic concepts and principles of epidemiology” by Dr. Dharmendra Gahwai, is a lengthy but thorough and fairly accessible…
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- Medical Studies
Equipoise
Benjamin Freedman, Ph.D., wrote the first major paper on clinical equipoise in medical research in 1987 in the New England Journal of…
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- Infectious Diseases
Ethics and journalism
Guidance on the release of information concerning deaths, epidemics or emerging diseases Recommendations developed by public health officials, health care…
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- Aging
Ethnic Aging
Resource Centers for Minority Aging Research (RCMAR) — this list from the National Institute of Aging provides information on various…
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- International
European Resources
These resources can enable journalists to find information. To contribute additional sources or suggest a relevant health topic, send a…
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- Aging
Evidence-based policy
Addressing the Health Needs of an Aging America: New Opportunities for Evidence-Based Policy Solutions. A comprehensive policy brief from The…
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- Aging
Exercise
Exercise is vitally important for older adults. Learn about the National Institute on Aging’s Go4Life exercise initiative for older adults.…
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- Health Equity
Experts
Darrell Gaskin, Ph.D. Director of the Johns Hopkins Center for Health Disparities Solutions, Johns Hopkins Bloomberg School of Public Health…
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- Infectious Diseases
Experts
John Aitchison, Ph.D. President, Center for Infectious Disease Research He can be reached through his media contact: May Wildman at…
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- COVID-19
Fact Checking
Excellent Q & A on COVID-19, published on March 17 by the Poynter Institute, with fact-check data and information. It…
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- Medical Studies
FDA’s Emergency Use Authorization
To better understand all the ways the FDA’s Emergency Use Authorization mechanism works and what is and is not allowed…
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- Insurance
Federal agencies
Assistant Secretary for Planning and Evaluation (ASPE) advises the federal Secretary of the Department of Health and Human Services on…
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