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We are gathering the best sources for information about health information technology. Click on the resource that interests you to visit that site.

Academic centers

Advocacy groups

Consulting firms

Government resources

Industry groups

Journals and news sources

MACRA

Prescription Drug Monitoring Programs (PDMPs)

Regional telehealth resources

Research organizations

Studies and research

Telehealth delivery organizations

Think tanks

Workgroups

Academic centers

Center for Digital Health, Brown University – Hub where researchers from Brown and its affiliated hospital partner to design, test and deploy digital health solutions

Center for Digital Mental Health, University of Oregon – Center where researchers build digital tools to enhance mental health, especially among underserved groups and young people

Center for Digital Health, Moffitt Cancer Center – Hub of shared services that uses innovative tools and technology to deliver new experiences at the cancer center

Division of Digital Psychiatry, Beth Israel Deaconess Medical Center – Collaborative research group of mental health professionals with backgrounds in medicine, engineering and clinical care, working to improve quality and accessibility of treatment for mental illness

Clemson-MUSC AI Hub, Clemson University and the Medical University of South Carolina (MUSC) – Joint effort for studies in the area of artificial intelligence applied to biomedical research

Center for Medical Device Cybersecurity, University of Minnesota. Hub for discovery, outreach and workforce training around device security and potential threats.

Stanford Medicine’s Center for Digital Health – Research center looking to advance digital health through various studies of health technologies.

Regenstrief Institute at Indiana University: Informatics and research-focused organization looking at improving quality of care, increasing efficiency of health care delivery, preventing medical errors and enhancing patient safety.

Center for Information Technology and Society, University of California, Santa Barbara

Center for Information Technology Policy, Princeton University

Stanford University Law School Center for Internet and Society

Berkeley Center for Law and Technology: Research center at the UC Berkeley School of Law. Consumer rights and privacy and data protection are focuses.

Center on Privacy and Technology at Georgetown Law Center: Think tank focused on privacy and surveillance law and policy. A focus is new technologies such as wearables (FitBits, etc.) and biometrics.

Center for Information Technology Policy at Princeton: Interdisciplinary center at Princeton University. Relevant research includes digital technology and social inequality.

UCSF Center for Vulnerable Populations: Conducts research on health IT and the safety net, among other topics

Advocacy groups

Center for Medical Interoperability – working to advance data sharing in medicine, founded by health systems

EHR Association (EHRA) – Trade group of EHR vendors run under the HIMSS umbrella organization.

Hyperledger Project: An open-source collaborative on blockchain technology.

Patient Privacy Rights

Center for Democracy and Technology (CDT): Washington-based civil liberties group focused on digital technology.

Electronic Frontier Foundation (EFF): Landmark civil liberties group and open Internet advocate.

Electronic Privacy Information Center (EPIC): One of the first civil liberties and public privacy advocates, located in Washington, D.C.

Open Notes: Movement to make clinician notes more accessible to patients (@myopennotes)

CTel Robert J. Waters Center for Telehealth and e-Health law: In 1995, CTeL was created in response to a need for a legal and regulatory organization that focuses on issues impacting the advancement of telehealth.

Consulting firms

Frost & Sullivan  - Consulting and research group that releases reports on HIT.

The Advisory Board Company: Publishes research and supplies experts on health IT topics like telemedicine, EHRs and ICD-10.

Deloitte: Publishes research and supplies experts on health IT, consumer health, medical innovation and other health topics.

PriceWaterhouseCoopers (PWC): Publishes research and supplies experts on the new health economy, big data and health technologies.

Government resources

FDA Office of Digital Transformation. Provides high quality, secure and efficient IT and data solutions that enable the FDA to protect the public health.

National Association of County and City Health Officials (with resources on health IT)

FDA's Medical Device Safety Action Plan, April 2018

Health Data Matters Project: Health data ecosystem for some parts of Ohio.

MACRA and Health IT: ONC factsheet

CHIME CURES ACT and EHR Summary Chart: This legislative brief compares health IT provisions in the committee print of the 21st Century Cures Act

Office of the National Coordinator for Health Information Technology (ONC): The ONC, within the U.S. Department of Health and Human Services (HHS), is the principal federal entity charged with coordinating implementation of health IT and the electronic exchange of health information. The ONC was created via executive order in 2004 and mandated in the Health Information Technology for Economic and Clinical Health Act (HITECH) of 2009.

EHR Contract Guide, created by the Office of the National Coordinator for Health IT

Agency for Healthcare Research and Quality (AHRQ): Also an agency within the HHS, AHRQ promotes quality improvement in healthcare. Health IT is an AHRQ priority. AHRQ develops and releases resources and tools on how health IT can improve health care quality. More about the portfolio is here.

Food and Drug Administration (FDA): The agency tasked with overseeing the regulation of medical devices and mobile health applications.

Federal Trade Commission (FTC): The consumer protection agency that enforces rules around health claims of mobile applications and other technology companies.

HHS site on health information technology

CMS overview of telemedicine

Journals and news sources

Telemedicine and e-Health

Journal of Telemedicine and Telecare

Becker’s Health IT

STAT’s Health Tech section

Healthcare IT News

Healthcare IT Today

Industry groups

Medical Device Manufacturers Association: Trade association for leading medical device manufacturers.

ACT – The App Association: Trade association representing thousands of app developers

The Internet Association: Trade group representing top names in tech, including Google, Netflix, Facebook and Uber.

USTelecom: Trade group representing broadband companies.

FHIR Foundation: Fast Health Interoperability Resources (FHIR), pronounced "fire," is a standard for exchanging health information electronically and securely. The FHIR Foundation is run by HL7 and advocates for the FHIR standard.

Personal Connected Health Alliance: Stakeholder group promoting health and wellness in a connected environment. Members include Roche, Samsung and Phillips.

Commonwell Health Alliance: Vendor organization focused on interoperability, with members including Cerner, athenahealth, AllScripts and McKesson.

College of Healthcare Information Management Executives (CHIME)

American Medical Group Association (AMGA)

Association for Executives in Healthcare Information Security (AEHIS) - Focused on security regulations for medical devices, data security breaches and other security issues. 

Association of Clinical Research Organizations - Biotech member-based group that advocates for integrating research applications with EHRs.

Alliance for Connected Care - Pro HIT group, with Anthem, Intel, CVS Health as members

American Health Information Management Association (AHIMA)

American Medical Informatics Association (AMIA)

American Nursing Informatics Association (ANIA)

American Telemedicine Association: An international resource and advocate promoting the use of advanced remote medical technologies. 

Center for Connected Health Policy

eHealth Initiative: Member-based group that provides research and surveys on health IT issues.

Healthcare Information and Management System Society (HIMSS): Leading trade group promoting business through information technology. Hosts a premier annual conference on health IT.

Health Level Seven International (HL7): Founded in 1987, HL7 is a not-for-profit standards developing organization on a comprehensive framework and related standards for the exchange, integration, sharing, and retrieval of electronic health information that supports clinical practice and the management, delivery and evaluation of health services. HL7 has more than 1,600 members from over 50 countries, including 500 corporate members representing healthcare providers, government stakeholders, payers, pharmaceutical companies, vendors/suppliers, and consulting firms.

International Society for Telemedicine & eHealth

Telemedicine & Advanced Technology Research Center

MACRA

Understanding MACRA (AMA)

CMS factsheet on MACRA

AAFP factsheet on MACRA

Health Affairs Issue Brief on MACRA

Prescription Drug Monitoring Programs (PDMPs)

Safe Practice Recommendations for Safer Opioid Prescribing Strategies to improve technology in the clinical setting, such as EHRs, to reduce overprescribing of opioids.

Vital Signs: Changes in Opioid Prescribing in the United States, 2006–2015 - A July 2017 report from the CDC

The Heller School for Social Policy and Management at Brandeis University tracks legislation and regulations on PDMPs, as well as offering guidance for states in best practices.

The State of PDMPs – brief from the American Academy of Family Physicians

State Strategies to Improve the Use of Prescription Drug Monitoring Programs to Address Opioid and other Substance Use Disorders

PMP InterConnect – an initiative of the National Association of Boards of Pharmacy to facilitate transfer of PDMP data across state lines. Forty states are participating thus far.

American Medical Association resource landing page on PDMPs

Research organizations

Palo Alto Medical Foundation Research Institute – Affiliated with Sutter Health, the California hospital giant, conducts clinical trials on a variety of conditions and also on technology in the medical workplace.

Regional telehealth resources

California Telemedicine and eHealth Center

Northeast Telehealth Resource Center

Upper Midwest Telehealth

Northwest Regional Telehealth Resource Center

Great Plains Telehealth Resource and Assistance Center

Southwest Regional Telehealth Resource Center

Studies and research

MedStar Health's National Center for Human Factors in Healthcare

2017 HIMSS Cybersecurity Survey

Creative Strategies: Market research, consulting and advisory company in Silicon Valley

National Conference of State Legislatures: News and research on activities in the nation's statehouses

Health Affairs issue on Delivery System Innovation, August 2017

Telehealth delivery organizations

Government affiliated
California Telehealth Network
Federal Rural Health Care Pilot Program
Universal Service Administrative Company

Private
Nighthawk Teleradiology Services & Radiology Outsourcing
NightShift Radiology
Center for Connected Health (Partners HealthCare)
National Consortium of Telehealth Resource Centers
– Umbrella organization for 12 regional and two national telehealth resource centers (TRCs).

Think tanks

Information Technology and Innovation Foundation, focused on the intersection of technology and public policy, including health policy.

Pew Charitable Trusts Health IT project

The Atlantic Council: International forum on global security, with some focus on cybersecurity

Brookings Institute: Brookings has a focus on health privacy and cybersecurity, with regular blog posts and research papers on these topics.

ECRI: Health care research institute on medical procedures, devices, drugs, processes and other technology.

RAND Corporation: Nonpartisan policy research group that conducts health IT research.

California Health Care Foundation (CHCF): Conducts research on health data and privacy, telemedicine and technology.

Workgroups

Annual Report Workgroup ( on 21st Century Cures law progress)

Workgroup for Electronic Data Interchange (WEDI): Formed in 1991 by the Secretary of Health and Human Services (HHS), WEDI was named in the 1996 HIPAA legislation as an advisor to the HHS and continues to serve in an advisory role.

Health IT Policy Committee Workgroups, overseen by the Office of the National Coordinator for Health IT.