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We are gathering the best sources for information about health information technology. Click on the resource that interests you to visit that site.
Academic centersArtificial Intelligence in Medicine division at Cedars-Sinai Medical Center – group that explores how AI can be applied to help solve complex medical problems and enhance clinical care Oregon Center for Aging and Technology – center that uses and develops technologies to assess health and activity in the home UCSF-Stanford Center of Excellence in Regulatory Science and Innovation – Center for UCSF, Stanford and the FDA to collaborate on projects that promote regulatory science, including research, education and outreach, with foundations and commercial companies working to develop medical products UCSF Center for Clinical Informatics and Improvement Research – center that conducts novel studies examining how to leverage electronic health records and other digital tools to improve clinical performance and health care value, and to scale results to promote health care transformation. Stanford Medicine Center for Digital Health - - center that aims to advance digital health through collaborations and studies of devices. Massachusetts AI & Technology Center for Connected Care in Aging and Alzheimer’s Disease – Center launched in November 2021 by UMass Amherst and Brigham and Women’s Hospital and funded by $20 million National Institutes of Aging grant seeks to improve in-home care for older adults and those with Alzheimer’s disease. Center for Digital Health, Brown University – Hub where researchers from Brown and its affiliated hospital partner to design, test and deploy digital health solutions Center for Digital Mental Health, University of Oregon – Center where researchers build digital tools to enhance mental health, especially among underserved groups and young people Center for Digital Health, Moffitt Cancer Center – Hub of shared services that uses innovative tools and technology to deliver new experiences at the cancer center Division of Digital Psychiatry, Beth Israel Deaconess Medical Center – Collaborative research group of mental health professionals with backgrounds in medicine, engineering and clinical care, working to improve quality and accessibility of treatment for mental illness Clemson-MUSC AI Hub, Clemson University and the Medical University of South Carolina (MUSC) – Joint effort for studies in the area of artificial intelligence applied to biomedical research Center for Medical Device Cybersecurity, University of Minnesota. Hub for discovery, outreach and workforce training around device security and potential threats. Stanford Medicine’s Center for Digital Health – Research center looking to advance digital health through various studies of health technologies. Regenstrief Institute at Indiana University: Informatics and research-focused organization looking at improving quality of care, increasing efficiency of health care delivery, preventing medical errors and enhancing patient safety. Center for Information Technology and Society, University of California, Santa Barbara Center for Information Technology Policy, Princeton University Stanford University Law School Center for Internet and Society Berkeley Center for Law and Technology: Research center at the UC Berkeley School of Law. Consumer rights and privacy and data protection are focuses. Center on Privacy and Technology at Georgetown Law Center: Think tank focused on privacy and surveillance law and policy. A focus is new technologies such as wearables (FitBits, etc.) and biometrics. Center for Information Technology Policy at Princeton: Interdisciplinary center at Princeton University. Relevant research includes digital technology and social inequality. UCSF Center for Vulnerable Populations: Conducts research on health IT and the safety net, among other topics Advocacy groupsCenter for Medical Interoperability – working to advance data sharing in medicine, founded by health systems EHR Association (EHRA) – Trade group of EHR vendors run under the HIMSS umbrella organization. Hyperledger Project: An open-source collaborative on blockchain technology. Center for Democracy and Technology (CDT): Washington-based civil liberties group focused on digital technology. Electronic Frontier Foundation (EFF): Landmark civil liberties group and open Internet advocate. Electronic Privacy Information Center (EPIC): One of the first civil liberties and public privacy advocates, located in Washington, D.C. Open Notes: Movement to make clinician notes more accessible to patients (@myopennotes) CTel Robert J. Waters Center for Telehealth and e-Health law: In 1995, CTeL was created in response to a need for a legal and regulatory organization that focuses on issues impacting the advancement of telehealth. Brain-computer interfaceBrainGate – Collaborative of researchers from Brown, Emory, Massachusetts General Hospital, Stanford, UC Davis, and the Department of Veterans Affairs working on developing brain-computer interface technologies to restore communication, mobility and independence for people impacted by neurologic disease, injury or limb loss. Clinical Neuroprosthetics and Brain Interaction, University of Texas at Austin – Lab that is working on the direct use of human brain signals to control devices, interact with the environment and recover from insults to and deficits of the central nervous system Direct Brain Interface Laboratory, University of Michigan – Lab working on the development of brain-computer interface technology for cognitive assessment and augmentive or alternative communication, among other areas. Brain-Computer Interface Laboratory, Eastern Tennessee State University Biomedical Functional Imaging and Neuroengineering Laboratory, Carnegie Mellon University Consulting firmsFrost & Sullivan - Consulting and research group that releases reports on HIT. The Advisory Board Company: Publishes research and supplies experts on health IT topics like telemedicine, EHRs and ICD-10. Deloitte: Publishes research and supplies experts on health IT, consumer health, medical innovation and other health topics. PriceWaterhouseCoopers (PWC): Publishes research and supplies experts on the new health economy, big data and health technologies. Government resourcesCybersecurity and Infrastructure Security Agency – Agency that works with partners to defend against cyber threats and build a more secure, resilient infrastructure FDA’s Center for Devices and Radiological Health – assures that patients and providers have timely, continued access to safe, effective, and high-quality medical devices and safe radiation-emitting products FDA’s Digital Health Center of Excellence – aims to connect and build partnerships to accelerate digital health advancements, share knowledge and advance best practices, and innovate regulatory approaches to provide efficient oversight while meeting FDA standards for safe and effective products FDA database of artificial intelligence and machine learning-enabled medical devices marketed in the United States. FDA Office of Digital Transformation. Provides high quality, secure and efficient IT and data solutions that enable the FDA to protect the public health. National Association of County and City Health Officials (with resources on health IT) FDA's Medical Device Safety Action Plan, April 2018 Health Data Matters Project: Health data ecosystem for some parts of Ohio. MACRA and Health IT: ONC factsheet CHIME CURES ACT and EHR Summary Chart: This legislative brief compares health IT provisions in the committee print of the 21st Century Cures Act Office of the National Coordinator for Health Information Technology (ONC): The ONC, within the U.S. Department of Health and Human Services (HHS), is the principal federal entity charged with coordinating implementation of health IT and the electronic exchange of health information. The ONC was created via executive order in 2004 and mandated in the Health Information Technology for Economic and Clinical Health Act (HITECH) of 2009. EHR Contract Guide, created by the Office of the National Coordinator for Health IT Agency for Healthcare Research and Quality (AHRQ): Also an agency within the HHS, AHRQ promotes quality improvement in healthcare. Health IT is an AHRQ priority. AHRQ develops and releases resources and tools on how health IT can improve health care quality. More about the portfolio is here. Food and Drug Administration (FDA): The agency tasked with overseeing the regulation of medical devices and mobile health applications. Federal Trade Commission (FTC): The consumer protection agency that enforces rules around health claims of mobile applications and other technology companies. HHS site on health information technology Journals and news sourcesJournal of Telemedicine and Telecare Industry groupsInternational Medical Device Regulators Forum – Group working to accelerate international medical device regulatory processes Medical Device Innovation Consortium – A public-private partnership developed to work with government and industry stakeholders to advance solutions that promote patient access to innovative medical technologies Medical Device Manufacturers Association: Trade association for leading medical device manufacturers. ACT – The App Association: Trade association representing thousands of app developers The Internet Association: Trade group representing top names in tech, including Google, Netflix, Facebook and Uber. USTelecom: Trade group representing broadband companies. FHIR Foundation: Fast Health Interoperability Resources (FHIR), pronounced "fire," is a standard for exchanging health information electronically and securely. The FHIR Foundation is run by HL7 and advocates for the FHIR standard. Personal Connected Health Alliance: Stakeholder group promoting health and wellness in a connected environment. Members include Roche, Samsung and Phillips. Commonwell Health Alliance: Vendor organization focused on interoperability, with members including Cerner, athenahealth, AllScripts and McKesson. College of Healthcare Information Management Executives (CHIME) American Medical Group Association (AMGA) Association for Executives in Healthcare Information Security (AEHIS) - Focused on security regulations for medical devices, data security breaches and other security issues. Association of Clinical Research Organizations - Biotech member-based group that advocates for integrating research applications with EHRs. Alliance for Connected Care - Pro HIT group, with Anthem, Intel, CVS Health as members American Health Information Management Association (AHIMA) American Medical Informatics Association (AMIA) American Nursing Informatics Association (ANIA) American Telemedicine Association: An international resource and advocate promoting the use of advanced remote medical technologies. Center for Connected Health Policy eHealth Initiative: Member-based group that provides research and surveys on health IT issues. Healthcare Information and Management System Society (HIMSS): Leading trade group promoting business through information technology. Hosts a premier annual conference on health IT. Health Level Seven International (HL7): Founded in 1987, HL7 is a not-for-profit standards developing organization on a comprehensive framework and related standards for the exchange, integration, sharing, and retrieval of electronic health information that supports clinical practice and the management, delivery and evaluation of health services. HL7 has more than 1,600 members from over 50 countries, including 500 corporate members representing healthcare providers, government stakeholders, payers, pharmaceutical companies, vendors/suppliers, and consulting firms. International Society for Telemedicine & eHealth Telemedicine & Advanced Technology Research Center MACRAUnderstanding MACRA (AMA) Health Affairs Issue Brief on MACRA Prescription Drug Monitoring Programs (PDMPs)Safe Practice Recommendations for Safer Opioid Prescribing Strategies to improve technology in the clinical setting, such as EHRs, to reduce overprescribing of opioids. Vital Signs: Changes in Opioid Prescribing in the United States, 2006–2015 - A July 2017 report from the CDC The Heller School for Social Policy and Management at Brandeis University tracks legislation and regulations on PDMPs, as well as offering guidance for states in best practices. The State of PDMPs – brief from the American Academy of Family Physicians PMP InterConnect – an initiative of the National Association of Boards of Pharmacy to facilitate transfer of PDMP data across state lines. Forty states are participating thus far. American Medical Association resource landing page on PDMPs Research organizationsPalo Alto Medical Foundation Research Institute – Affiliated with Sutter Health, the California hospital giant, conducts clinical trials on a variety of conditions and also on technology in the medical workplace. Regional telehealth resourcesCalifornia Telemedicine and eHealth Center Northeast Telehealth Resource Center Northwest Regional Telehealth Resource Center Great Plains Telehealth Resource and Assistance Center Southwest Regional Telehealth Resource Center Studies and researchMedStar Health's National Center for Human Factors in Healthcare 2017 HIMSS Cybersecurity Survey Creative Strategies: Market research, consulting and advisory company in Silicon Valley National Conference of State Legislatures: News and research on activities in the nation's statehouses Health Affairs issue on Delivery System Innovation, August 2017 Telehealth delivery organizations Government affiliated Think tanksInformation Technology and Innovation Foundation, focused on the intersection of technology and public policy, including health policy. Pew Charitable Trusts Health IT project The Atlantic Council: International forum on global security, with some focus on cybersecurity Brookings Institute: Brookings has a focus on health privacy and cybersecurity, with regular blog posts and research papers on these topics. ECRI: Health care research institute on medical procedures, devices, drugs, processes and other technology. RAND Corporation: Nonpartisan policy research group that conducts health IT research. California Health Care Foundation (CHCF): Conducts research on health data and privacy, telemedicine and technology. WorkgroupsAnnual Report Workgroup ( on 21st Century Cures law progress) Workgroup for Electronic Data Interchange (WEDI): Formed in 1991 by the Secretary of Health and Human Services (HHS), WEDI was named in the 1996 HIPAA legislation as an advisor to the HHS and continues to serve in an advisory role. Health IT Policy Committee Workgroups, overseen by the Office of the National Coordinator for Health IT. |
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