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We are gathering the best sources for information about health information technology. Click on the resource that interests you to visit that site.

Academic centers

Advocacy groups

Consulting firms

Government resources

ICD-10

Industry groups

MACRA

Prescription Drug Monitoring Programs (PDMPs)

Regional telehealth resources

Research organizations

Studies and research

Telehealth delivery organizations

Workgroups

Other resources

Academic centers

Berkeley Center for Law and Technology: Research center at the UC Berkeley School of Law. Consumer rights and privacy and data protection are focuses.

Center on Privacy and Technology at Georgetown Law Center: Think tank focused on privacy and surveillance law and policy. A focus is new technologies such as wearables (FitBits, etc.) and biometrics.

Center for Information Technology Policy at Princeton: Interdisciplinary center at Princeton University. Relevant research includes digital technology and social inequality.

Advocacy groups

Hyperledger Project: An open-source collaborative on blockchain technology.

Patient Privacy Rights

American Medical Association Digital Resource

Center for Democracy and Technology (CDT): Washington-based civil liberties group focused on digital technology.

Electronic Frontier Foundation (EFF): Landmark civil liberties group and open Internet advocate.

Electronic Privacy Information Center (EPIC): One of the first civil liberties and public privacy advocates, located in Washington, D.C.

Open Notes: Movement to make clinician notes more accessible to patients (@myopennotes)

Consulting firms

The Advisory Board Company: Publishes research and supplies experts on health IT topics like telemedicine, EHRs and ICD-10.

Deloitte: Publishes research and supplies experts on health IT, consumer health, medical innovation and other health topics.

PriceWaterhouseCoopers (PWC): Publishes research and supplies experts on the new health economy, big data and health technologies.

Government resources

Health Data Matters Project: Health data ecosystem for some parts of Ohio.

MACRA and Health IT: ONC factsheet

CHIME CURES ACT and EHR Summary Chart: This legislative brief compares health IT provisions in the committee print of the 21st Century Cures Act

Office of the National Coordinator for Health Information Technology (ONC): The ONC, within the U.S. Department of Health and Human Services (HHS), is the principal federal entity charged with coordinating implementation of health IT and the electronic exchange of health information. The ONC was created via executive order in 2004 and mandated in the Health Information Technology for Economic and Clinical Health Act (HITECH) of 2009.

EHR Contract Guide, created by the Office of the National Coordinator for Health IT

Agency for Healthcare Research and Quality (AHRQ): Also an agency within the HHS, AHRQ promotes quality improvement in healthcare. Health IT is an AHRQ priority. AHRQ develops and releases resources and tools on how health IT can improve health care quality. More about the portfolio is here.

Food and Drug Administration (FDA): The agency tasked with overseeing the regulation of medical devices and mobile health applications.

Federal Trade Commission (FTC): The consumer protection agency that enforces rules around health claims of mobile applications and other technology companies.

HHS site on health information technology

CMS overview of telemedicine

ICD-10

Guidance to the transition and implementation of ICD-10 from the Centers for Medicare and Medicaid.

Industry groups

FHIR Foundation: Fast Health Interoperability Resources (FHIR), pronounced "fire," is a standard for exchanging health information electronically and securely. The FHIR Foundation is run by HL7 and advocates for the FHIR standard.

Personal Connected Health Alliance: Stakeholder group promoting health and wellness in a connected environment. Members include Roche, Samsung and Phillips.

Cognative Computing Consortium: A forum for the advancement of cognative computing and allied technologies.

Commonwell Health Alliance: Vendor organization focused on interoperability, with members including Cerner, athenahealth, AllScripts and McKesson.

College of Healthcare Information Management Executives (CHIME)

American Medical Group Association (AMGA)

Association for Executives in Healthcare Information Security (AEHIS) - Focused on security regulations for medical devices, data security breaches and other security issues. 

Association of Clinical Research Organizations - Biotech member-based group that advocates for integrating research applications with EHRs.

Alliance for Connected Care - Pro HIT group, with Anthem, Intel, CVS Health as members

American Health Information Management Association (AHIMA)

American Medical Informatics Association (AMIA)

American Nursing Informatics Association (ANIA)

American Telemedicine Association: An international resource and advocate promoting the use of advanced remote medical technologies. 

Center for Connected Health Policy

eHealth Initiative: Member-based group that provides research and surveys on health IT issues.

Healthcare Information and Management System Society (HIMSS): Leading trade group promoting business through information technology. Hosts a premier annual conference on health IT.

Health Level Seven International (HL7): Founded in 1987, HL7 is a not-for-profit standards developing organization on a comprehensive framework and related standards for the exchange, integration, sharing, and retrieval of electronic health information that supports clinical practice and the management, delivery and evaluation of health services. HL7 has more than 1,600 members from over 50 countries, including 500 corporate members representing healthcare providers, government stakeholders, payers, pharmaceutical companies, vendors/suppliers, and consulting firms.

Specialty Care Safety Net Initiative

International Society for Telemedicine & eHealth

Telemedicine & Advanced Technology Research Center

MACRA

Health Affairs Issue Brief on MACRA

Prescription Drug Monitoring Programs (PDMPs)

Vital Signs: Changes in Opioid Prescribing in the United States, 2006–2015 - A July 2017 report from the CDC

The Heller School for Social Policy and Management at Brandeis University tracks legislation and regulations on PDMPs, as well as offering guidance for states in best practices.

The State of PDMPs – brief from the American Academy of Family Physicians

A Compact to Fight Opioid Addiction – National Governors Association (includes PDMP and EHR integration recommendations)

PMP InterConnect – an initiative of the National Association of Boards of Pharmacy to facilitate transfer of PDMP data across state lines. Forty states are participating thus far.

American Medical Association resource landing page on PDMPs

Regional telehealth resources

California Telemedicine and eHealth Center

Northeast Telehealth Resource Center

Midwest Alliance for Telehealth and Technologies Resources

Northwest Regional Telehealth Resource Center

Great Plains Telehealth Resource and Assistance CenterSouthwest Regional Telehealth Resource Center

Studies and research

National Conference of State Legislatures: News and research on activities in the nation's statehouses

Health Affairs issue on Delivery System Innovation, March 2017

"The Doctor Will See You Now?" is a January 2016 issue brief by the National Center for Policy Analysis that grades state telemedicine regulations. The American Telemedicine Association awarded 22 states an “A” for regulations governing telemedicine providers-patient encounters. Three states — Texas, Alabama and Arkansas — got an F.

"Variation In Rural Health Information Technology Adoption And Use" was published online by Health Affairs in January 2016. It found that w"hile rural hospitals and physicians have adopted health information technology at the same, or greater, rates as their urban counterparts, meaningful-use attestation varies dramatically among rural providers. Also, rural providers are more likely to skip a year of declaring that they have met meaningful-use requirements, putting them at a financial disadvantage compared to urban providers."

Variation in Quality of Urgent Health Care Provided During Commercial Virtual Visits (Schoenfeld et al, JAMA Internal Medicine, April 4, 2016)

Prescribing rates of antibiotics: Telemed docs more likely to prescribe broad-spectrum antibiotics (Bowman, Fierce Health IT)

Telehealth companies could benefit from attention to detail on antibiotics use, other services (Johnson, Modern Healthcare)

Analysis Of Teladoc Use Seems to Indicate Expanded Access to Care for Patients without Prior Connection to a Provider (Uscher-Pines and Mehrotra, Health Affairs

The evidence around telemedicine isn’t well researched. Individual studies vary and on the aggregate show mixed results. See a 2015 Altarum Institute report and a draft report from the Agency for Healthcare Research and Quality). The Congressional Budget Office has long said paying for more telemedicine within a fee-for-service system will increase Medicare spending.

Health Affair’s February 2014 issue was devoted to telehealth.

Telehealth delivery organizations

Government affiliated
California Telehealth Network
Federal Rural Health Care Pilot Program
The Universal Service Administrative Company’s list of all 42 pilot programs
Center for Consumer Self Care (University of California, San Francisco)

Private
Nighthawk Teleradiology Services & Radiology Outsourcing
NightShift Radiology
Center for Connected Health (Partners HealthCare)
REACH Call (Telemedicine for Strokes)

Think tanks

Brookings Institute: Brookings has a focus on health privacy and cybersecurity, with regular blog posts and research papers on these topics.

ECRI Institute: Health care research institute on medical procedures, devices, drugs, processes and other technology.

RAND Corporation: Nonpartisan policy research group that conducts health IT research.

California Health Care Foundation (CHCF): Conducts research on health data and privacy, telemedicine and technology.

Workgroups

Workgroup for Electronic Data Interchange (WEDI): Formed in 1991 by the Secretary of Health and Human Services (HHS), WEDI was named in the 1996 HIPAA legislation as an advisor to the HHS and continues to serve in an advisory role.

Health IT Policy Committee Workgroups, overseen by the Office of the National Coordinator for Health IT

Other resources

Health Information Technology Legislative Tracking Database, National Conference of State Legislatures

Center for Telehealth and E-Health Law

Using Telehealth to Improve Quality and Safety: Findings from the AHRQ Health IT Portfolio (2008)

Electronic Health Records: A Global Perspective

A systematic review of telemonitoring for the management of heart failure

Telemedicine and e-Health

Journal of Telemedicine and Telecare

USDA open discussion on “The Power of Telemedicine”

Cost-effectiveness Analysis of a Rural Telemedicine Collaborative Care Intervention for Depression, Archives of General Psychiatry

Sustaining innovation in telehealth and telecare (UK)

Why a Colorado telemedicine pilot didn’t save money (page 28)

Sustainable Rural Telehealth Innovation: A Public Health Case Study, Health Services Research

A systematic review of telemedicine projects in Colombia, Journal of Telemedicine and Telecare

Will July 15 be a Dark Day for Telemedicine? Health Data Management

National Association of Community Health Centers' telemedicine resources