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DataWe are working to gather raw data for your own analysis and to pinpoint trustworthy outside sources of data, analysis and summaries that you can use in your reporting. Below are data sources that can assist you in covering health information technology. Office of Inspector General Data Brief on Medicare Telehealth Services, September 2022 – Report demonstrating that 1,714 of 742,000 Medicare-certified providers billed for telehealth in ways indicating high risk of fraud, waste or abuse. Ageism in artificial intelligence for health – World Health Organization policy brief about legal, non-legal and technical measures that can be used to minimize the risk of ageism in AI technologies Center for Devices and Radiological Health’s 2021 annual report – Describes the division’s work in 2021 including that devoted to pandemic response and granting emergency use authorization to thousands of medical devices focused on COVID-19. HIMSS Future of Healthcare Report – In this November 2021 report, the Health Information and Management Systems Society (HIMSS) and others compiled information from interviews with 12 health care subject matter experts to identify trends to watch, such as growth of digital health and artificial intelligence. The U.S. Food and Drug Administration’s Guiding Principles for Good Machine Learning Practice for Medical Device Development. The FDA, Health Canada and the United Kingdom’s Medicines and Healthcare products Regulatory Agency identified 10 guiding principles to help promote safe, effective and high-quality medical devices that use artificial intelligence and machine learning. World Health Organization guidance on Ethics & Governance of Artificial Intelligence for Health. This report from June 2021 identifies the ethical challenges and risks with the use of artificial intelligence of health and provides six consensus principles to ensure AI works to the public benefit of all countries. HIE usage nationally: Strategic Health Information Exchange Collaborative survey Physician burnout and EHRs: How in-basket electronic messages contribute to physician burnout, Health Affairs, July 2019. EHR Safety Report, August 2018, Pew Charitable Trusts, AMA ECRI to Continue Clinical Guideline Work Shuttered by Federal Government: The National Guideline Clearinghouse (NGC), formerly available through the Agency for Healthcare Research and Quality, has found a new home. EHR market share readiness, by developer All of Us Research Program – A National Institutes of Health program to gather data on one million or more people living in the United States to advance precision medicine. The program in late 2017 incorporated wearable devices into its data gathering operations. Joint Commission electronic clinical quality measure (eCQM) data (released in Nov. 2017) Medicare dataMedicare Advantage Encounter Data Show Promise for Program Oversight, But Improvements Are Needed: A report from the Office of Inspector General in the U.S. Department of Health and Human Services shows the rate of errors in the data, how they happen and how that error rate can be improved. CybersecurityHealth Sector Cybersecurity: 2021 Retrospective and 2022 Look Ahead – HHS report providing a history of notable cybersecurity incidents in hospitals through 2021. ECRI’s Top 10 Health Technology Hazards for 2022 – List of items the nonprofit patient safety organization feels warrant the most attention U.S. Department of Health and Human Services’ Office for Civil Rights list of all health care data breaches involving 500 or more patient records. It is searchable by covered entity, state, date, and number of individuals affected. 2020 Cost of a Data Breach Report, from IBM, explores financial impacts and security measures to help organizations mitigate costs. National Conference of State Legislatures cybersecurity legislation update, 2017 Federal Trade Commission (FTC) enforcement actions Guidelines and standards from ONCMedicare EHR incentive programs Draft Interoperability Standards Health IT Playbook: Online tool created by the Office of the National Coordinator for Health IT to provide guidance to providers on health IT adoption. Health IT developer database: ONC database to search for certified health IT developers and their products Medical device identification systemAn important aspect of the Unique Device Identification system is the FDA-administered Global Unique Device Identification Database (GUDID), where information about each device will be housed. This information is available to the public at Access GUDID. Users of this database can search on specific devices and also download information on every device entered into the database. The FDA says it updates the database daily. How health IT is changing health careTop of Mind for Top Health Systems 2022 – Report of health system leaders’ thoughts on health technology and patient access, from the Center for Connected Medicine and KLAS, available for free download. Patient demand for digital health management tools boosts funding to this healthcare IT segment to new highs – research brief from CB Insights. For a copy of the full report, email media@cbinsights.com. Individuals’ Access and Use of Patient Portals and Smartphone Health Apps, 2020, Office of the National Coordinator for Health IT data brief, September 2021 American Telehealth Association State of the States report, July 2019 The Office of National Coordinator for Health IT has databases about providers and use of technology and public health measures. AHRQ's Health Care Innovations Exchange is a database of evidence-based innovations and tools suitable for a range of health care settings and populations. State breakdown of electronic health records payments to Medicare and Medicaid providers through Nov. 30, 2016: Readmissions Reduction ProgramCMS has published updated data about hospital readmission rates. Under the ACA, hospitals with high rates of 30-day readmissions for Medicare patients with specified conditions are penalized. Scroll down to the end of this document for the data. POS (Provider of Service)This POS (Provider of Service) file contains data on health care providers that take part in Medicare, and what services they provide. It’s updated quarterly. Health of minority populationsThe ACA requires federal health data collection and analysis, including demographic data aimed at better understanding disparities. The HHS Office of Minority Health has detailed reports on five racial and ethnic groups. The RWJF DataHubThe Robert Wood Johnson Foundation's DataHub tracks state-level data and allows users to customize and visualize facts and figures on key health and health care topics. It has a broad range of data sets pertaining to health coverage, status and reform. Use data to cover the Affordable Care Act
The databases can answer many questions, such as whether consumers are having trouble paying their sky-high deductibles or whether waiting lines are growing at doctors’ offices. Want to know how your state exchange differs from others? This data can help. Hempstead also offers ideas for stories that can be mined from the data no matter your technical abilities. State Exchange MarketsThe State Exchange Markets tool, from the Center on Budget and Policy Priorities, has a preliminary summary of policies and data collected from other research data sets and Marketplace materials as well as from information provided by state advocates and Marketplace staff. Covered California Data and Research Health Insurance Exchange (HIX) CompareThis dataset, available from the Robert Wood Johnson Foundation,provides information on benefit design and cost sharing for health plans offered in all 50 states and the District of Columbia. Specifically, the dataset includes data on premiums, network composition, deductibles, out-of-pocket limits, and copayment and coinsurance amounts. Local HealthLocalhealthdata.org (via Washington University’s Health Communication Research Laboratory). This includes U.S. government health data, data from numerous health organizations (i.e. American Heart Association), that can be searched by locality (state, city, county) analyzed, and easily turned into charts. (Not all the underlying raw data can be downloaded, but it includes sources of the information that may be able to provide it.) Meaningful useUS Health Information Knowledge Base (AHRQ database): Registry and repository of health metadata. This includes a Meaningful Use portal. County health rankingsA collaboration between the University of Wisconsin Population Health Institute and the Robert Wood Johnson Foundation, this is a rich source of data about health at the local level – and who is doing what to improve it. You can get local story ideas by tracking the grantees – who is doing what. And you can dive into a whole lot of data through several links on the site, and particularly on this page. Then you can go even deeper with the data drill-down guide. The site looks at national and local trends regarding mortality and premature death, health related quality of life, as well as factors such as air pollution, smoking rates, obesity and teen births. Health care expenditures and utilizationThe Agency for Healthcare Research and Quality offers data about medical expenditures, health care costs and utilization, broken down by state and by payer. There's also data about health care disparities and state snapshots. The Medical Expenditure Panel Survey (MEPS) gives details on what health services Americans use, how frequently, what they cost, and how they are paid for. The U.S. Agency for Healthcare Quality and Research compiles data and sends out summaries, with data broken down by state. See Statistical Brief #329: State Differences in the Cost of Job-Related Health Insurance, 2010. The MEPS website has updated 2010 health insurance data by state. |
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The Robert Wood Johnson Foundation has six databases on its "Reform by the Numbers" website that can be useful for reporters covering health care. In an exclusive briefing at an AHCJ New York chapter meeting in June 2014, the Foundation's Katherine Hempstead, Ph.D., discussed the highlights of the databases.
