Tag Archives: Patient Protection and Affordable Care Act

Meeting the challenges of explaining health reform

Joanne Kenen

About Joanne Kenen

Joanne Kenen, (@JoanneKenen) the health editor at Politico, is AHCJ’s topic leader on health reform and curates related material at healthjournalism.org. She welcomes questions and suggestions on health reform resources and tip sheets at joanne@healthjournalism.org. Follow her on Facebook.

Editor’s note: Today we introduce Joanne Kenen as AHCJ’s health reform topic leader. She will be writing blog posts, tip sheets, articles and gathering resources to help our members cover the complex implementation of health reform.

Health reform, to say the least, is confusing. The Kaiser Family Foundation had a great “data note” recently establishing just how little the American people know about reform. (The lack of knowledge apparently did not correlate with the intensity of political feeling).

So, how did people do? Fewer than one in 100 got all 10 questions right. Only a quarter scored seven or more right – a “C” or above if we were grading.

A third got four or fewer right (F minus, minus?) Two percent didn’t get one single question right. Most were in the low-performing middle, correctly answering 4 to 6.

What killed me (no pun intended) is that only 45 percent knew – after all the zillions of words we’ve written about this – that there are no government panels making life-and-death decisions for older Americans. Can’t you see the tabloid headline: “Zombie Death Panels Refuse To Die.”

Sorting out the details

Why should we, as journalists, care about this non-knowledge – aside from the fact that it’s just depressing? I think it’s a two-fold challenge.

The first challenge is internal. Many health care reporters are juggling several health and science or health and domestic policy beats, or so immersed in local coverage that it’s hard to find time to sort out the 8 gazillion arcane details of the Patient Protection and Affordable Care Act . That’s where I come in – AHCJ has asked me to be its – or rather your – “health reform topic leader.” My task: help you get unconfused. I’ve done one tip sheet on the one-year mark of ACA (which is March 23), with more to come.

The second challenge is external – or maybe existential. We have all reported and reported and reported on this. Some of our work has been very good. But it hasn’t gotten through the noise and buzz and screeching and tweeting of the current media world – or through editors pressing us to write about who is up and who is down politically, rather than about the substance. I don’t have any easy answers on how to fix that – how to make sure that our readers/watchers/listeners (and sometimes our editors) understand and value our credibility – and find time to pay attention.

Find creative ways to tell the story

One tool is to translate the policy locally and sometimes narratively. I am always looking for fresh ways to tell readers about health care, in ways they can come to it anew and understand. A couple of years ago, just before I left Reuters, I did a story about how many college kids were studying health policy – a field that barely existed during the last big national debate in the Clinton years. Another time I wrote a magazine feature about a family with three generations of doctors (plus a 5-year-old carrying his dad’s black bag and talking about aortas). Without loading a lot of overt policy in the piece – which would not have flown in Washingtonian Magazine – I was able to illustrate how this family’s experiences had spanned a half-century of changes in American medicine. If you do stories like that (which are fun by the way) or see great work by colleagues, let me know about them. I’ll be writing for this blog regularly and will share some of your creative approaches.

Another tool – and obligation – is to just understand the policy and the politics and the changing health care system so well that we can break it down and make it clear for our readers. There are a lot of resources out there. I’ll try to bring some of them to your attention, and when you find useful ones, bring them to mine by sending e-mail to joanne@healthjournalism.org.

The sheer amount of resources – issue briefs, timelines, webcasts, transcripts – can be daunting but having so much at our online fingertips is still way easier than it was 15 years ago, when we had to go to events in person, collect stacks of documents, remember where we filed the documents, and then frantically search through the pages when we needed a fact on deadline (unless NPR’s Julie Rovner was within shouting distance of my desk in the Senate press gallery, then I could just ask her … )

Here’s one way to start. Kaiser followed up by putting that pop quiz online. Test yourself. (Or test your editor? Or how about your spouse or partner – unless you really don’t want confirmation of how well they do or do not listen?) And maybe then think about what, if anything, confused you. Or them. And try to end the confusion for someone else.

About me

joanne-kenen
Joanne Kenen

For those of you who don’t know me – I’ve covered both the politics and policy of health in Washington, D.C., for years, and written about it for numerous kinds of publications. I have been a health-focused Congressional correspondent for Reuters, a Kaiser Media Fellow writing about palliative care, aging and end of life in 2007, a think-tank based blogger, and I have freelanced for everyone from Slate to the AARP to Health Affairs.

I have written about both the cost/coverage side of things, and the delivery system changes, particularly about chronic disease and aging. I’ll be in Philly for Health Journalism 2011, AHCJ’s annual conference, so say hello, and feel free to email me or comment below on how I can help you.

Panel focuses on health reform anniversary

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ's social media efforts and edits and manages production of association guides, programs and newsletters.

Support for health reform has been complicated by political rhetoric and the general public’s lack of knowledge about the Affordable Care Act, according to officials who spoke at last week’s AHCJ Chicago chapter meeting.Bruce Japsen, moderator, and panelists Chiquita Brooks-LaSure of the Office of Health Reform at U.S. Health and Humans Services and Illinois Department of Insurance Director Michael McRaith discussed the Affordable Care Act.

Chiquita Brooks-LaSure, the director of coverage policy in the Office of Health Reform at the Department of Health and Humans Services, Michael McRaith, director of the Illinois Department of Insurance, and William Santulli, chief operating officer for Advocate Health Care, gathered to tell 25 journalists and students where the Act stands as its one-year anniversary approaches. Bruce Japsen, a Chicago Tribune health care reporter, moderated the panel.

The talked about the most common misnomers about the health care reform effort, how health insurance exchanges are being implemented, the concept behind accountable care organizations and more.

AudioAHCJ members can read more about the discussion and download audio of the panel.

Court ruling opens door for reporting on new law

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ's social media efforts and edits and manages production of association guides, programs and newsletters.

Melissa Preddy of the Donald W. Reynolds National Center for Business Journalism followed up on Monday’s court ruling that part of the federal health care reform law is unconstitutional.

supreme-court

Photo by dbking via Flickr

Preddy puts the ruling in perspective and includes background about other lawsuits in the works. She also offers a number of story ideas to help reporters explain how the new law will affect their audience as well as some interesting stories to look at when planning your coverage.

Preddy even shares how her premiums have increased and how her insurer shared the news with her – the company attributed the higher costs to the mandates of the health care law.

For lots more ideas from journalists on the front lines, be sure to see these AHCJ resources:

July 1 marks a big day for health reform

Pia Christensen

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ's social media efforts and edits and manages production of association guides, programs and newsletters.

Scott Hensley, on NPR’s Shots blog, has a nice rundown of the health care provisions that go into effect today, including the so-called tanning tax, high-risk insurance pools and the new healthcare.gov website.

For reporters writing about the tanning tax, we  remind you to look carefully at the numbers and be sure to accurately report the data behind this policy decision. Much of the reporting we’ve seen cites numbers presented by the World Health Organization: “use of sunbeds before the age of 35 is associated with a 75% increase in the risk of melanoma.” But that statistic represents the relative risk, while the absolute risk – the chance of something happening – is far different. Reuters Health Editor Ivan Oransky, M.D., has written about the subject for Covering Health:

“You can see how if someone is lobbying to ban something – or, in the case of a new drug, trying to show a dramatic effect – they would probably want to use the relative risk.”

For a detailed explanation, be sure to read Oransky’s post about the statistics on tanning.

If you’re reporting on the high-risk insurance pools that go into effect today, don’t miss our tip sheet on the topic, with story tips, suggestions and resources from four experience reporters. Apart from being a policy story, it’s of great interest to all your readers, viewers or listeners who have pre-existing conditions and are struggling to find coverage.

Another tip sheet addresses what needs to be covered now that the Patient Protection and Affordable Care Act has been passed and begins to be implemented.

A recent briefing, “Reporting on health reform between now and 2014,” offers further advice and resources from some top Washington, D.C.-based journalists on implementation deadlines, how to cover local issues, Medicare reimbursement rates, what reporters should look for in their states and more.