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The big health data bazaar: Author and journalist Adam Tanner has tips for covering the hidden trade in patient data. Tanner has written two books on the subject, finding that the business of patient data is an opaque trade that is hard to unravel.
He says that the big health data bazaar is complicated but fascinating, and one worthy of further reporting as society grapples with the balance between allowing patients to control their own data, and allowing outsiders to study it to advance commerce and science.
This tip sheet provides an overview of what kind of data is out there, how it is used, who the big players are in the business, why we should care and questions that journalists should explore.
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